Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Happy Hypoxia/silent Hypoxia or similar

Just wondered whether anyone has experienced regular low oxygen levels 94% and under without feeling particularly or overly distressed or breathless as can be seen in COPD or similar respiratory...

Your Azathioprine (Imuran) Side Effect Experience

Azathioprine, also known as Imuran, can cause several side effects, commonly including nausea and vomiting. Long-term usage can cause cancer and infection risk increases. Has your Myasthenia gravis ever been...

In remission from GMG by fixing diet

Developed GMG symptoms - double vision, drooping eyelid, loss of strength / endurance, etc. - in late 2003 when I was in my mid-40s and was diagnosed early 2004. Fortunately...

shoes and boots

Does anyone have good , lightweight shoes with great traction,not super expensive? Boots are also an issue. Have found zip, kind of light weight, sort of warm but during the...

Ocular MG

I was diagnosed by a neuro opthamologist but my blood tests were negative. Even though I have ptosis, the consulting neurologist said that he did not believe I have this...

Diet

Is there one basic recommended diet for patients with gMG? Especially for fatigue and brain fog? Thank you...

Has anyone tried compression sleeves post activities?

My husband has had myasthenia gravis for nearly 3 years now. He is an amazing man and has handled himself with such dignity throughout this journey. He did have a...

Awaiting possible diagnosis

Hi, am new to these boards. I’m 52 and living in the UK. I mentioned an intermittently droopy right eyelid to my optometrist about 4 months ago who referred me...

Cogan's lid twitch

I have tested negative for the antibodies, but I think I still might have the ocular version. I did the coggins eyelid twitch test at home and it looks positive...

Looking for doctor

I’m hoping to move to Georgia to live with my daughter and looking for a doctor in the Savanna area. Hopefully someone in the community can refer me to someone...

Categories

Select a category to find topics that interest you.