Myasthenia Flare?I currently have ocular myasthenia. Thursday I ended up at the ER. My mouth was moving weird, my vision impaired, difficulty swallowing and walking. When doing a CT Scan, I...reactions2repliesDiagnosis
Waiting on lab results and not fully diagnosedToday is my first day on this forum. I need some advice. I have been symptomatic since Janaury. I have seen every specialist known to man. We have ruled out...reactions4replies
Does a Negative ANA mean a negative for MG or are the specific antibody tests different.Hello, I have been having crazy and life changing symptoms within a week after my vaccine in 2021 ( Pfizer). Blurred/double vision Eyelid droop-steroids help Weakness Tremors Cognitively I feel...reactions1replyAutoimmune DiseasesTips & AdviceNewly Diagnosed
Is mestinon not available anymore? I have been taking mestinon for ocular MG since about 2012. I’ve been told that it’s been stopped being made and I can’t get anymore. I’m waiting to be reviewed...reactions1reply
Stomach nausea and painMy husband was diagnosed with MG about 6 months ago and since then he's had problems with his stomach with nausea and pain could this be a side effect from...reactions5replies
MG TerminologyI bet we all remember the first few years after being diagnosed with Myasthenia gravis and constantly finding new MG-related terms we were unfamiliar with. Many of us are still...reactions2repliesDiagnosisAwarenessNewly Diagnosed
Immunotherapy (stem cell)Does anyone have experence treating autoimmune MG with immunotherapy (stem cell) treatments simular to what is used in cancer treatment? I am 41 years old and have been recently diagnosed...reactions4repliesTreatment
How do you get diagnosis when you keep getting turned down from doctors?So I'm new to this whole thing. And this site, to which im entirely grateful for. I am extremely frustrated, and I don't know what to do now, and i...reactions11repliesSeronegative
Myasthenia GravisHello. I have MG.After 18 months I'm actually seeing a MG specialist. Neurologist are great,but to have a specialist who opened a MG clinic in a hospital has been great...reactions6replies
Hereditary MGMy mother in law told me her mother had MG and she died in late 50s due to complications from the disease. My mother in law was told that the...reactions3replies