Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

MG Terminology

I bet we all remember the first few years after being diagnosed with Myasthenia gravis and constantly finding new MG-related terms we were unfamiliar with. Many of us are still...

Immunotherapy (stem cell)

Does anyone have experence treating autoimmune MG with immunotherapy (stem cell) treatments simular to what is used in cancer treatment? I am 41 years old and have been recently diagnosed...

How do you get diagnosis when you keep getting turned down from doctors?

So I'm new to this whole thing. And this site, to which im entirely grateful for. I am extremely frustrated, and I don't know what to do now, and i...

Myasthenia Gravis

Hello. I have MG.After 18 months I'm actually seeing a MG specialist. Neurologist are great,but to have a specialist who opened a MG clinic in a hospital has been great...

Hereditary MG

My mother in law told me her mother had MG and she died in late 50s due to complications from the disease. My mother in law was told that the...

Mg and asthma

I have been treated since2001 for Mg. Briefly prior to that they said I had asthma. Mg was diagnosed and asthma treatment discontinued. I had chest infection over Xmas and...

Steroids, Rituximab and summer

I have diagnosed with gMG (seropositive)since Feb 2022. I was on steroids since then. I stared to have issues with my vision. Checked up and diagnosed as a steroids responder...

Highest Steroid Dose You’ve Been Prescribed

What is the highest steroid dose you have been prescribed for Myasthenia symptoms? Did a doctor order this after you were in a crisis or significant flare? Have you been...

Not reacting to treatments

Hi there im a caretaker and my spouse has MG 3 weeks ago he was not feeling good since the new IV treatment was not lasting him ( vyvgard) And...

Neck Pain

Do you have Myasthenia gravis and experience neck pain? https://myasthenia-gravis.com/clinical/pain What does the sensation feel like, and when do you notice it? Have you found any remedies to help? As...

Categories

Select a category to find topics that interest you.