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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Share some medications that have been proved to be useful for CMS patients.

Hii everyone! I have a neurological disorder called congenital myasthenic syndrome (CMS). Despite trying various medications, none of them have been effective. My neurologist has suggested ephedrine treatment, which has...

Refractory Mg-Does Your MG Not Cooperate With Treatment?

Do you have refractory MG? If you are unsure of this term, refractory MG refers to anyone with MG in which: "MG symptoms that do not improve with typical drugs...

Tinnitus

I have tinnitus which coincidentally started about the same time my other neurological issues did. Have others had this same problem and if so, has your neurologist said it was...

Side effects vs. Symptoms

I'm 74, diagnosed in 2019 did steroids, MESTINON, and CELLCEPT and I find that the side effects of the medications are as bad as the symptoms. I'm presently on ULTOMIRIS...

What Main Quality Do You Look For in a Doctor

When aiming to find a doctor that feels like a good fit, we must remember that health professionals are human and not perfect. Some have so much on their plate...

National Awareness Month

Being new to M-G.com (and the Health Union Community) does Myasthenia-Gravis.com do anything each year to give light to one, or more, aspects of Myasthenia-Gravis; either awareness, or healing, or...

Working Full-Time

I was diagnosed in November so I am virtually new. I'm on 5mg of prednisolone and pyridostigmine 90mg 4 times a day I get days when I think I've got...

Rheumatologist

In my search for a new Neurologist I have read that a Rheumatologist may be a better choice, if available, to help with MG. Any comments, or clarity, as to...

Will you take our In America survey and help others understand the true impact of MG?

**SURVEY NOW CLOSED** To better understand the patient experience and realities of MG, we are fielding our 3rd Myasthenia Gravis In America survey. By taking this anonymous survey, you can...

MG Flare Treatment

My wife suffered an MG Flare one month ago. She went to the hospital and received IVIG. She came home for one week and went back in for plasmapheresis. Today...

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