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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Mouth and scalp

I'm 52 was diagnosed at 37 and have a strange variety of symptoms like burning mouth and scalp syndrome can't eat watermelon in large portions if I do it trigger...

Dance

I just got diagnosed with MG 3 days ago. I'm still in the hospital trying to regain my strength. I was fine one day...painting my kitchen, taking my grandkids to...

My experience with University of Chicago neuromuscular clinic-seronegative friensly

I feel like I need a disclaimer or something similar:This is just reflecting on my journey for a diagnosis. UCM has made a HUGE impact on my life and I...

Looking for doctor to treat my mg

I am in Westpalm Beach Florida and looking for a doctor who has experience treating Mayosthesia gravis Thx Joe Patel...

Imuran again!

20 yrs ago during the first year of my diagnosis my neurologist tried me on Imuran. I wasn't even done with 30 day supply when he stopped it. Now twenty...

New diagnosed

I just diagnosed s week and just got the hospital on Prednisone hope to start mestinon tomorrow? Need something for tongue and blurry vision! Does it take awhile to start...

Azathioprine (Imuran)

Hello, I am newly diagnosed as of November '22. I am responding well to Pyridostigmine, with speech and swallowing problems greatly reduced. Now my neurologist wants me to take Azathioprine...

Pain with myasthenia

I have recently been diagnosed with myasthenia, antibody musk. I will start treatment as soon as my insurance allows. I am having pain in my neck. Are there stretches that...

OMG and other medications I’m taking

Hi all. I’m in the UK. Diagnosed with OMG 10 years ago when I was 42. Remitting and relapsing. Went into remission for a good few years then this year...

Enter Our Awareness Month Giveaway

*This giveaway has closed but we still welcome community members to share their coping strategies.* In honor of Myasthenia Gravis Awareness Month, we're gifting one lucky winner a copy of...

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