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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Diaphragm Discomfort

Hello, Does anyone get this, such as an ache around the area?...

Headache with Mestinon

I am experiencing stomach cramps , diarrhea and headaches with 60 mg of Mestinon. I’ve read about stomach cramps and diarrhea but not headaches. I never get headaches. Do these...

Myasthenia gravis problem

Self at 69, In October 2023, noticed that my right eye lid has closed half and does not open After diagnosis my eye nerve to musle contact has become weak...

Side effects of mestinon

I’d have a mild case of mestinon for mg symptoms for about 10 years It’s not working as well as I would like.I take 1 or 2 tablets a day...

Diagnosed in 6/24. Myasthenia Gravis

Neurologist started me on pyridostigmine bromide 60mg. Twice a day. They r helping me but on 30%. I can only chew food properly for 3-4 bites and then I have...

Had You Heard of Myasthenia Gravis Before Your Diagnosis?

When you were diagnosed, or a doctor proposed you could have Myasthenia gravis, had you heard of it before? If yes, from where? I was utterly clueless about what it...

MG without Excerbations

I believe I’ve had this since 2017 but it didn’t bloom until September 2023. It took me to September 3, 2024 to see a Neurologist. Dr ordered tests and the...

Myasthenia crisis???

After an extremely busy weekend visiting family, I woke feeling slightly unwell. Usually if I overdo things I get flares of my symptoms: off-balance, tired, pain through most of my...

Extreme heaviness and throbbing pain in lower legs

I am about 12 days from receiving my semi-annual infusion of retuximab. I am experiencing heaviness and a throbbing pain in my lower legs. This is not a cramping. Has...

Does anyone have an issue with floaters

I recently went the opticians because I suddenly had flashing lights and floaters in both my eyes,I was told it was a vitreous detachment due to age(I'm 72) and no...

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