In remission from GMG by fixing dietDeveloped GMG symptoms - double vision, drooping eyelid, loss of strength / endurance, etc. - in late 2003 when I was in my mid-40s and was diagnosed early 2004. Fortunately...Reactions0reactionsComments2 repliesDiet & NutritionRemissionGeneralized MG
shoes and bootsDoes anyone have good , lightweight shoes with great traction,not super expensive? Boots are also an issue. Have found zip, kind of light weight, sort of warm but during the...Reactions0reactionsComments5 repliesAssistive Devices
Ocular MGI was diagnosed by a neuro opthamologist but my blood tests were negative. Even though I have ptosis, the consulting neurologist said that he did not believe I have this...Reactions0reactionsComments6 replies
DietIs there one basic recommended diet for patients with gMG? Especially for fatigue and brain fog? Thank you...Reactions0reactionsComments1 repliesDiet & NutritionGeneralized MG
Has anyone tried compression sleeves post activities?My husband has had myasthenia gravis for nearly 3 years now. He is an amazing man and has handled himself with such dignity throughout this journey. He did have a...Reactions0reactionsComments2 repliesAssistive Devices
Awaiting possible diagnosisHi, am new to these boards. I’m 52 and living in the UK. I mentioned an intermittently droopy right eyelid to my optometrist about 4 months ago who referred me...Reactions0reactionsComments5 repliesSymptomsDiagnosis
Cogan's lid twitchI have tested negative for the antibodies, but I think I still might have the ocular version. I did the coggins eyelid twitch test at home and it looks positive...Reactions0reactionsComments2 repliesDiagnosisSeronegative
Looking for doctorI’m hoping to move to Georgia to live with my daughter and looking for a doctor in the Savanna area. Hopefully someone in the community can refer me to someone...Reactions0reactionsComments3 repliesCaregiving
double visionFor dealing with MY Ptosis based, or caused, double vision, I initially found the closing of one eye gave me clear vision in the other eye. The problem with this...Reactions0reactionsComments14 repliesGeneralized MGTreatmentVision
Mycophenolate Mofetil 500mgLast year was a milestone making 80, Octogenarian status, but challenge with multiple health concerns, full hysterectomy finding ovarian cancer, stage 3, chemo (now in remission thank God); urinary infection...Reactions0reactionsComments8 repliesOcular MG