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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Juvenile MG recently diagnosed

My 10 year old daughter was diagnosed on October 31 2023. (As she says. A Halloween to remember). My husband and I are overwhelmed by how many symptoms she has...

Disability

I am currently on leave from my job for mental health issues. Much of what has led up to that, was my diagnosis in November of '21. I have a...

Sorting out MG and non MG symptoms - balance vs. weakness

context: my diagnosis is only tentative seronegative - but I have had classic MG-type symptoms for over 20 years with no meds prescribed so far. In an effort to better...

Featured

Waiting Sucks

Hello! I haven’t been officially diagnosed but I think it might be right around the corner. I’m waiting on some bloodwork and my follow up is on Dec 1st. In...

Benefit

Can i ask anyone in uk living with myasthenia do or can you claim PIP allowance...

Pain when swallowing.

I know that a lot of us have difficulty swallowing. When I am overtired or it’s time for medication I can have difficulty swallowing with pain, sometimes a good bit...

Treatment with ULTOMIRIS

Has anyone received ULLTOMIRIS infusions and what were your results?...

Advocating and making changes in the diagnosis and treatment of Myasthenia Gravis

I'm feeling like advocating more for Myasthenia Gravis Awareness and Understanding. Without our contributions to research, community outreach. Educating others and the medical field of what our life is like...

Severity of symptoms

My husband was experiencing muscle weakness in his legs for several years - needing to frequently "rest" between activities. We talked to several doctors with no real suggestions. Last year...

MG Flare

Could an MG Flare be caused by surgery of knee replacement two months prior to the Flare?...

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