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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Sleep

I am a 21-year MGer and sleep 4 - 5 hours a night. Even though I use a CPAP, I'm in a real bind. What suggestions do you have?...

One word to describe the past month

Describe how you have felt this past month with one word....

More patient control of Pyridostigmine (Mestinon) dosing?

The acetylcholinesterase-inhibition properties of Pyridostigmine (pyri) only last a handful of hours. The doctor's Rx very specifically regulates the dosing period and amount. For example, a common Rx for pyri...

Droopy Eyelid

Hi All, I am new here but wanted to share this. Also I am not saying it will work for all but it has majorly helped me. My doctor gave...

Neuromuscular Blocking Medication Triggered MG Symptoms

Neuromuscular blocking drugs are administered to patients during surgery as muscle relaxants to prevent muscle movement. These medications are scientifically recommended against use in myasthenia gravis patients and, if necessary...

Mindfulness & Myasthenia Gravis: A Forum for Stress Management

Mindfulness & Myasthenia Gravis is an online forum crafted for individuals living with myasthenia gravis, offering a platform to discuss and share insights on how mindfulness can help in managing...

Tapering Off Mestinon?

I was on the phone with my PCP who told me that skipping a dose of Mestinon can cause my weakness symptoms to get worse even if I don't have...

Reassurance on blood test results

Hello, Just reaching out for some reassurance I've waited 6 months just to get my blood test results and I just want to ask if 8 nmol/L is positive for...

Juvenile MG recently diagnosed

My 10 year old daughter was diagnosed on October 31 2023. (As she says. A Halloween to remember). My husband and I are overwhelmed by how many symptoms she has...

Disability

I am currently on leave from my job for mental health issues. Much of what has led up to that, was my diagnosis in November of '21. I have a...

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