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Read conversations, start a discussion, and connect with others about myasthenia gravis.

HUSK MG

I accompanied my friend to a neurologist. Because of slurred speech and weak facial muscles he tested her for the Musk type of MG. The test was negative for MUSK...

General questions

I was diagnosed years ago, as the years have past I could do less & less without losing my breathe. I'm on IVIG twice a week every other week. My...

Burning pain/muscle weakness

Hello. Been suffering from a weakness that progressed over years from mild to disabling. The weakness is like the muscles just don't get enough nutrients/fuel to keep working like normal...

Has anyone had a transternal thymectomy?

I had a transternal thymectomy about 14 weeks ago. Whenever I lay down then get up, seems like my chest sticks to whatever is on the inside of it where...

Leg weakness

I have MG, but my main symptoms are leg weakness and fatigue. Double vision is much better after Thymectomy in 2017. I would love to hear from people that have...

Has anyone here had a dual diagnosis of Myasthenia Gravis and Arnold Chiari?

I know this kind of diagnosis is quite rare, or it was when I was diagnosed in 1988. The symptoms are similar, but exaggerated. I was told “this is usually...

Did You Massage Your Thymectomy Scar?

Many hospitals and health institutions recommend scar massaging a few weeks post-operation. Different massaging methods may be suggested, but they all have the same purpose. The aim of scar massaging...

How long does nerve pain last on chest after thymectomy?

I just want to know how long will I have the nerve/muscle pain since surgery? I can’t stand anything touching the incision. Any help?...

COVID and gMG

I started getting double vision about one month after I took my fifth COVID vaccination, has anyone else tied their initial symptoms to the COVID shots?...

Do You Have MuSK or LRP4 Antibodies?

Do you have MuSK or LRP4 antibodies? "Most people with MG have problems with acetylcholine receptors (AChR). However, other antibodies may cause MG, such as muscle-specific kinase (MuSK) and low-density...

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