How does the heat affect you?Yesterday I took a walk, the distance I've been able to work up to since starting Mestinon a few weeks ago. Nowhere near how far I could walk a year...Reactions0reactionsComments4 repliesExerciseNewly DiagnosedWeather
Mestinon stop working I’ve had myasthenia since 1987. Last few years Mestinon doesn’t help as much. Anyone else ???...Reactions0reactionsComments1 replies
Still not diagnosed but Dr started me on mestinon.....I have not officially been diagnosed. Waiting on labs. But because of symptoms, the Doctor started me on Mestinon. It seemed to help at first but now it is only...Reactions0reactionsComments8 replies
NEW APPROVED MG TREATMENT for Gmg - Vyvgart HytruloSuper exciting!! The FDA has just approved Argenx’s subcutaneous injection (given in the fatty tissue just under the skin) formulation of efgartigimod, called Vyvgart Hytrulo (efgartigimod alfa and hyaluronidase-qvfc) to...Reactions0reactionsComments3 repliesTreatmentGeneralized MGSymptoms
MG and anger i do not have MG but my mother was diagnosed with general myasthenia 22 years ago when i was 13. i have joined the forum to seek a few answers...Reactions0reactionsComments5 repliesFriends & FamilyIntimacy & RelationshipsMental Health
What is the “I choke on everything diet?”I read about a member being on this diet. My jaw gets tired easily when eating and it isn’t just when I chew steak. I’m interested in eating foods on...Reactions0reactionsComments5 repliesCoping
What painkillers can I takeI suffer with two bad knees. One I had replaced quite some years ago and the other needs replacing but I am reluctant due to the risk of infection. I...Reactions0reactionsComments2 repliesCoping
Are facial exercises good for ocular MG?Between the start of double vision and being diagnosed with MG, my pcp sent me to physical therapy where I was give a set of facial exercises to do. After...Reactions0reactionsComments6 repliesOcular MGExerciseTips & Advice
A Fatigue ScaleWhen I began having MG symptoms it occurred to me that it would be helpful in order to track the progress of the disease to have a fatigue scale comparable...Reactions0reactionsComments1 repliesTips & AdviceCoping
Self healed through Food!I was diagnosed in 2014 due to a positive reaction to Mestonin. I couldn’t talk and walk up stairs. I self healed through lifestyle design and the AIP. Symptom free...Reactions0reactionsComments8 replies