Myasthenia Gravis for 15 years and has Fallen; now has Brain Bleeds.Hello, I'm new here and I'm researching for my Father in law who has had MG for over 15 years. About a month ago he passed out walking up the...reactions1replyInsurance & DisabilityCrisisMuscle Weakness
Financial Assistance Available Through The National Organization for Rare DiseasesNORD is a non-profit organization. This is from their website. "We provide patient assistance programs to help individuals living with rare diseases: Obtain medication Receive financial help with insurance premiums...reactions2repliesCostInsurance & DisabilityResearch & Clinical Trials
What exercise routines do you enjoy with MG?Share how you stay active! Do you exercise in the morning or in the evening? How do you know how much exercise is too much? This forum post is an...reactions55repliesExercise
Orthotics/BracesHi! I was wondering if anyone has ever gotten orthotics/braces for muscle weakness? If so, what has your experience been? Has it helped? Even with meds and strengthening exercises from...reactionsreplies
Do you have MG and have tried Magnesium L-Threonate or Magnesium Glycinate? Did you have any adverse reactions?While there's a wealth of published studies on Magnesium Sulfate and Myasthenia gravis (https://myasthenia-gravis.com/clinical/magnesium-sulfate), the same can't be said for Magnesium L-Threonate or Magnesium Glycinate and MG. If you're an...reactionsrepliesAwarenessNewly DiagnosedTriggers
Ocular MG Hi All, 34yo male I have had Ocular MG for about 10 years now. My only symptom is double vision (and its severe). Usually when the bouts of double vision...reactions23repliesOcular MGMuscle WeaknessSeronegative
Pyridostigmine availabilityI take 180 mg of pyridostigmine ER twice daily, but lately I've had trouble finding a pharmacy that has it. They all tell me that they can't get it from...reactions10repliesTreatmentCoping
Pyridostigmine/Mestinon Adverse ReactionsDid you try Pyridostigmine/Mestinon and have adverse reactions causing you to stop taking it? If you are comfortable with sharing, which specific side effects?...reactionsrepliesTreatmentSide EffectsAwareness
What can we really do when we need to take antibiotics? Help,help.I have a Uti ,I'm so sick. What to one dr they gave me prescription not the list but it made me sick. I think maybe it is I am...reactions3replies
RUSK myasthenia gravis Anyone there with the rare Rusk Mg. Just diagnosed recently. What meds are you on?...reactions2replies