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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Has anyone had a transternal thymectomy?

I had a transternal thymectomy about 14 weeks ago. Whenever I lay down then get up, seems like my chest sticks to whatever is on the inside of it where...

Leg weakness

I have MG, but my main symptoms are leg weakness and fatigue. Double vision is much better after Thymectomy in 2017. I would love to hear from people that have...

Has anyone here had a dual diagnosis of Myasthenia Gravis and Arnold Chiari?

I know this kind of diagnosis is quite rare, or it was when I was diagnosed in 1988. The symptoms are similar, but exaggerated. I was told “this is usually...

Did You Massage Your Thymectomy Scar?

Many hospitals and health institutions recommend scar massaging a few weeks post-operation. Different massaging methods may be suggested, but they all have the same purpose. The aim of scar massaging...

How long does nerve pain last on chest after thymectomy?

I just want to know how long will I have the nerve/muscle pain since surgery? I can’t stand anything touching the incision. Any help?...

COVID and gMG

I started getting double vision about one month after I took my fifth COVID vaccination, has anyone else tied their initial symptoms to the COVID shots?...

Do You Have MuSK or LRP4 Antibodies?

Do you have MuSK or LRP4 antibodies? "Most people with MG have problems with acetylcholine receptors (AChR). However, other antibodies may cause MG, such as muscle-specific kinase (MuSK) and low-density...

Is anyone else on azathioprine?

I have been taking azathioprine now for several months, but it does not seem to be helping much for muscle weakness and fatigue. My neurology PA said it can take...

How does the heat affect you?

Yesterday I took a walk, the distance I've been able to work up to since starting Mestinon a few weeks ago. Nowhere near how far I could walk a year...

Mestinon stop working

I’ve had myasthenia since 1987. Last few years Mestinon doesn’t help as much. Anyone else ???...

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