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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Is anyone else on azathioprine?

I have been taking azathioprine now for several months, but it does not seem to be helping much for muscle weakness and fatigue. My neurology PA said it can take...

CBD and how it is good or bad for myasthenic patients.

With sore muscles I would like to use CBD cream. I am concerned that the weak muscles might not respond well. At the same time would it be a real...

Exhaustion?

Hi, I'm not (yet?) diagnosed with MG, but I have a strong suspicion, and my doctor does too and is currently doing tests to check on it. Usually, my symptoms...

Neck Pain

Do you have Myasthenia gravis and experience neck pain? https://myasthenia-gravis.com/clinical/pain What does the sensation feel like, and when do you notice it? Have you found any remedies to help? As...

Share some medications that have been proved to be useful for CMS patients.

Hii everyone! I have a neurological disorder called congenital myasthenic syndrome (CMS). Despite trying various medications, none of them have been effective. My neurologist has suggested ephedrine treatment, which has...

Pretty sure I have MG

Hello! I have a long and complicated history so I won’t get too detailed with it. I have been trying to get a diagnosis for my muscle weakness and mobility...

Pain with myasthenia

I have recently been diagnosed with myasthenia, antibody musk. I will start treatment as soon as my insurance allows. I am having pain in my neck. Are there stretches that...

possibly diagnosed with MuSK MG and confused/scared

I am a 34 year old woman in New York and for the last 7 months, been having strange symptoms on and off. It started with my arms/legs tingling and...

No diplopia, will meds improve eye movement when reading?

Do you guys think that this is worth treating? I'm very suspicious that I have ocular mg. I am positive for multiple physical signs including the ice test, cogan's lid...

Im frustrated with testing

I started with pretty extreme weakness in my legs and pain in my back and hips. My primary ruled out orthopedic causes and referred me to a neurologist. I am...

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