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Read conversations, start a discussion, and connect with others about myasthenia gravis.

What Test(s) Were Used to Diagnose Your MG?

What tests did doctors run to diagnose your MG? Were imaging and bloodwork involved in your diagnosis?...

What were your immediate changes after your MG diagnosis?

As we begin our MG journey, there is the initial shock. After that, we realize that we need to make adjustments in our daily lives. What were you first and...

What Part of Your Legs Do You Have Pain or Cramps Most Often?

What part of your legs do you most often experience pain or cramping? Are you currently on Pyridostigmine (Mestinon), or were you when you were experiencing this?...

Understanding Myasthenia Gravis: Symptoms and Diagnosis

Myasthenia gravis (MG) is a chronic autoimmune neuromuscular disorder characterized by varying degrees of skeletal muscle weakness. This condition occurs when the immune system produces antibodies that interfere with the...

First Symptoms

What were the first MG symptoms you experienced? How long did they persist before you were diagnosed? How long until you felt you possibly had something serious? - Jodi, Team...

Was Gaslighting Involved in Your Diagnosis Journey?

Did any health professionals dismiss your symptoms before you finally received the answers that you had an MG diagnosis? Were you ever told you were making up your symptoms or...

How do you manage MG speech problems?

Have you ever experienced speech problems with MG? Speech symptoms can include slurred speech, trouble forming words, a monotone voice, and more. Tell us what it's like. How do you...

What are the early symptoms of Myasthenia Gravis, and how can they be managed effectively?

Myasthenia Gravis (MG) often begins with symptoms that may seem mild but can gradually worsen. Early signs include muscle weakness, especially in the eyes, face, and throat, which may cause...

Have you noticed any toe changes like curling or stiffness?

Have you noticed any changes in your toes, like curling or stiffness, either before or after your diagnosis of Myasthenia gravis? How have these changes affected your daily activities?...

Muscle Spasms with and without Pyridostigmine (Mestinon)

Have you taken mestinon and experienced muscle spasms? Did your doctor have you suspend the use of the treatment? Have you noticed muscle spasms even without being on mestinon? Muscle...

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