Facial swelling and throat closure I've been dealing with MG for about ten years. From extreme fatigue, drooling, drooping of my eyes and vision issues. This last exacerbation affected my throat , it closed cutting...Reactions0reactionsComments16 repliesAwareness
Possibility of only Ocular MG and not worse symptomsI've had a sleepy eye in one eye for 30+ years. I'm currently approaching 60. At least my wife has noticed that I've had a droopy eye for our entire...Reactions0reactionsComments4 repliesTips & AdviceCopingAwareness
What Year Were You Diagnosed With Myasthenia Gravis?What year were you diagnosed with Myasthenia gravis? How long did it take to receive a diagnosis? What treatments were available to you at the time? Have you tried any...Reactions0reactionsComments68 repliesAwarenessDiagnosisTreatment
What is myasthenia gravis?What are some tips to help me with myasthenia gravis?...Reactions0reactionsComments1 repliesAwarenessAssistive DevicesGeneralized MG
Cane UseI was 'sort of' diagnosed with MG by an ophthalmologist who specialized in neurological eye issues -- awaiting blood test results for the Mayo Clinic. Anyway, when I walk my...Reactions0reactionsComments3 repliesAssistive DevicesCopingAwareness
Have you had an MG flare or crisis after a vaccination (not COVID)? Have you had an MG flare or crisis after a vaccination (not COVID)? https://myasthenia-gravis.com/vaccines If you are comfortable sharing, which vaccine was it? Vaccines can be of concern for those...Reactions0reactionsComments1 repliesTriggersTravelAwareness
One word to describe the past monthDescribe how you have felt this past month with one word....Reactions0reactionsComments1 repliesSymptomsAwarenessFriends & Family
Advocating and making changes in the diagnosis and treatment of Myasthenia Gravis I'm feeling like advocating more for Myasthenia Gravis Awareness and Understanding. Without our contributions to research, community outreach. Educating others and the medical field of what our life is like...Reactions0reactionsComments3 repliesAwarenessResearch & Clinical TrialsDiagnosis
Which antibiotics are safe to have if you have ocular myasthenia gravisPlease helpm me, What antibiotics are safe to have if you have ocular myasthenia gravis...Reactions0reactionsComments1 repliesOcular MGAwarenessAutoimmune Diseases
Do You Have MuSK or LRP4 Antibodies?Do you have MuSK or LRP4 antibodies? "Most people with MG have problems with acetylcholine receptors (AChR). However, other antibodies may cause MG, such as muscle-specific kinase (MuSK) and low-density...Reactions0reactionsComments5 repliesDiagnosisTypesAwareness