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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Low-dose naltrexone

Hello everyone There's someone here who has heard of or is taking LDN ?...

New life with MG

I’m just starting my journey with MG. I’m scared and concerned. People are beginning to notice that there's something wrong. My eyes...

Can MGnegative patient take VYTGARD

My doctor subscribed it for me and I am MG negative FDA only approved for MG positive...

Borderline achr antibodies

Hey, new girl here. Long story short my gp text the other day to say the achr antibodies have come back "borderline"...

Ultomiris vs Vyvgart

My doctor is wanting to switch me from Ultomiris to Vyvgart. I wanted to know if there is anyone who has made...

Therapies to relieve symptoms

Hey everyone, I'm looking for some therapies that might help relieve some of my symptoms. For a bit of background... I'm 26...

EMG test on Mestinon?

Hi, I have been put on Mestinon 90mg every 4 hours during the day and 180 mg time release at night. Should...

Does IVIG work?

Hello, I have generalized MG confirmed by blood work at age 35. Prednisone made me feel better but I stopped taking it...

MYOCLONUS

Nightly and now at times during afternoon nap. When extremely short of breath, my ribs feel as if squeezing and aching pain...

My PCP says...

Although the neuro has yet to diagnose me, he put me on Mestinon and it seems to help (although only 2x per...

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