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Read conversations, start a discussion, and connect with others about myasthenia gravis.

toll prednisone took on my body

I have a big round face, big neck, weight gain and round torso, just cut back over 3 months and now off of it. too early to see what will...

I've bee n prescribed CellCept

Anyone out there using cellcept now who can give me some information, etc??? Reading about all the possible side effects is lots of fun, if you know what I mean!...

What medical testing is OK if you have gMG?

Orthopedic specialist is wanting to do multiple tests to evaluate several issues. These include MRI, nerve conduction tests, mylogram with dye, etc. Can't find internet sites that discuss medical testing....

Pyridostigmine

I was just diagnosed about a 5 weeks ago, doc put me on 60mm of Pyridostigmine 3x a day. I feel no change, Doc said first, it could take up...

Treatment

Doc is looking @ Imuran or CellCept & IVIG for me. Anyone have any insight or experience with these treatments? *sounds like the "cure" may be worse than the disease?...

Diagnosis Eludes Us- So Frustrated

At 19 I noticed my daughter holding her chin up all of the time and she stopped singing around the house. She had trouble swallowing and chewing. Since then she...

breathing problems with mg

Hi I was diagnosed with generalized mg nine months ago .I am currently taking a range of medication . pyridostigmine and immunosuppressants plus I also recieve immunoglobulin treatment every month...

Does Prednisone help with fatigue?

Hello, Was diagnosed with MG last month. I am trying to be ultra conservative with my approach. So far I have been taking Mestinon 3x per day as a muscle...

Needing help understanding Test Results

Hi everyone, Recently had a MG panel with reflex to Musk through Quest and I have a specific question about AChr modulating antibody. My result was 22. Reference range was...

it started out of the blue

Has anyone else just suddenly experienced a sensation that one of their hands had been disconnected or somehow unplugged? While the other hand started trembling? I was in an Ulta...

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