On a scale of 1-10, how much were you able to participate in holiday activities this year?On a scale of 1-10, how much were you able to participate in holiday activities this year?...reactions6repliesSymptomsFriends & FamilyCoping
Loss of appetiteI have MG. I have had it for at least 3 years. About 6 months ago I started noticing that Had lost my appetite. Even for things like chocolate and...reactions1replyCopingAutoimmune Diseases
What were your immediate changes after your MG diagnosis?As we begin our MG journey, there is the initial shock. After that, we realize that we need to make adjustments in our daily lives. What were you first and...reactions9repliesNewly DiagnosedSymptomsCoping
How do you manage MG speech problems?Have you ever experienced speech problems with MG? Speech symptoms can include slurred speech, trouble forming words, a monotone voice, and more. Tell us what it's like. How do you...reactions19repliesSymptomsTips & AdviceCoping
How did you navigate your first big holiday after your diagnosis?As the holiday season is finishing up, I remembered when I was diagnosed it was 2020 so, like most people, we didn't do our big family get-togethers, like we'd normally...reactions3repliesCopingNewly DiagnosedFriends & Family
Unprofessional/rude healthcare professionals I had a neurologist appointment today with a new neurologist I'd not met before and it was such a bad appointment. I'm the kind of person (and I also advocate...reactions2repliesHealthcare TeamCoping
DizzinessHi! I was diagnosed with MG in August. Dizziness made me unable to walk without looking like a stroke victim and that’s what the ER thought was the problem. I...reactions2repliesCopingSymptomsNewly Diagnosed
MG FlareWhat are some ways you get through a Myasthenia flare? It's so disappointing after things have been doing better for a while. I'm reading a lot and thankful that I...reactions5repliesCoping
Three crisis in 5 monthsMy Mg manifests itself in my ability to be able to walk along with vision neck muscle and not to much in facial events. It also steals my ability to...reactions8repliesCopingMuscle WeaknessSpeech
I can’t talk for myself but I will tell you a true fact As you may or may not know but I’m from Sydney Australia & this is my story or should I say a fellow MGer, I met this friend in Hospital...reactionsrepliesTips & AdviceCopingAutoimmune Diseases