Can MGnegative patient take VYTGARDMy doctor subscribed it for me and I am MG negative FDA only approved for MG positive...Reactions 0 reactions Comments2 repliesGeneralized MG
Borderline achr antibodiesHey, new girl here. Long story short my gp text the other day to say the achr antibodies have come back "borderline" raised (reference range where I am is 0.0-0.59)...Reactions 0 reactions Comments4 repliesGeneralized MGDiagnosis
Ultomiris vs VyvgartMy doctor is wanting to switch me from Ultomiris to Vyvgart. I wanted to know if there is anyone who has made the same switch - would like to hear...Reactions 0 reactions Comments7 repliesGeneralized MG
Therapies to relieve symptomsHey everyone, I'm looking for some therapies that might help relieve some of my symptoms. For a bit of background... I'm 26 and recently diagnosed with Myasthenia Gravis, whilst my...Reactions 0 reactions Comments5 repliesGeneralized MGNewly DiagnosedCoping
EMG test on Mestinon?Hi, I have been put on Mestinon 90mg every 4 hours during the day and 180 mg time release at night. Should I be on Mestinon while receiving an EMG...Reactions 0 reactions Comments7 repliesGeneralized MGSeronegative
Does IVIG work?Hello, I have generalized MG confirmed by blood work at age 35. Prednisone made me feel better but I stopped taking it after reading how it can destroy your body...Reactions 0 reactions Comments1 repliesGeneralized MG
MYOCLONUS Nightly and now at times during afternoon nap. When extremely short of breath, my ribs feel as if squeezing and aching pain in the past. Now only mild activity brings...Reactions 0 reactions Comments10 repliesGeneralized MGSleepSymptoms
My PCP says...Although the neuro has yet to diagnose me, he put me on Mestinon and it seems to help (although only 2x per day, AM and bed) but my PCP says...Reactions 0 reactions Comments12 repliesGeneralized MGHealthcare TeamSymptoms
toll prednisone took on my bodyI have a big round face, big neck, weight gain and round torso, just cut back over 3 months and now off of it. too early to see what will...Reactions 0 reactions Comments2 repliesGeneralized MG
I've bee n prescribed CellCeptAnyone out there using cellcept now who can give me some information, etc??? Reading about all the possible side effects is lots of fun, if you know what I mean!...Reactions 0 reactions Comments3 repliesAutoimmune DiseasesGeneralized MGAwareness