What Test(s) Were Used to Diagnose Your MG?What tests did doctors run to diagnose your MG? Were imaging and bloodwork involved in your diagnosis?...Reactions 0 reactions Comments24 repliesSymptomsNewly DiagnosedDiagnosis
Juvenile MG recently diagnosedMy 10 year old daughter was diagnosed on October 31 2023. (As she says. A Halloween to remember). My husband and I are overwhelmed by how many symptoms she has...Reactions 0 reactions Comments1 repliesNewly Diagnosed
Severity of symptomsMy husband was experiencing muscle weakness in his legs for several years - needing to frequently "rest" between activities. We talked to several doctors with no real suggestions. Last year...Reactions 0 reactions Comments2 repliesNewly DiagnosedSymptomsDiagnosis
Did You Massage Your Thymectomy Scar?Many hospitals and health institutions recommend scar massaging a few weeks post-operation. Different massaging methods may be suggested, but they all have the same purpose. The aim of scar massaging...Reactions 0 reactions Comments8 repliesThymectomySurgeryNewly Diagnosed
How does the heat affect you?Yesterday I took a walk, the distance I've been able to work up to since starting Mestinon a few weeks ago. Nowhere near how far I could walk a year...Reactions 0 reactions Comments4 repliesExerciseNewly DiagnosedWeather
Gabapentin and Myasthenia GravisGabapentin (Gralise, Horizant, Neuraptine) is deemed cautionary with Myasthenia gravis, as it can potentially worsen symptoms. Gabapentin is used to treat seizure, nerve, and pain conditions. It can be problematic...Reactions 0 reactions Comments27 repliesNewly DiagnosedTreatmentTriggers
How Long Have / Did You Experience Discomfort After Thymectomy?It has been almost 2 years since my transsternal thymectomy. I had a good amount of pain afterward, toward my stomach, sides, and back. At my follow-up appointments, my scans...Reactions 0 reactions Comments2 repliesThymectomyTreatmentNewly Diagnosed
Anyone else have MG and idiopathic transverse myelitisI've had idiopathic transverse myelitis (TM) for the past several years affecting the lower half of my body. Last month I was diagnosed with seropositive MG after developing weak lip...Reactions 0 reactions Comments3 repliesDiagnosisAutoimmune DiseasesNewly Diagnosed
Recent positive MG blood test Hi, i received a letter from the hospital last night confirming that i had tested positive from a blood test for MG. I had been to the doctors after suffering...Reactions 0 reactions Comments3 repliesOcular MGNewly DiagnosedTips & Advice
Does a Negative ANA mean a negative for MG or are the specific antibody tests different.Hello, I have been having crazy and life changing symptoms within a week after my vaccine in 2021 ( Pfizer). Blurred/double vision Eyelid droop-steroids help Weakness Tremors Cognitively I feel...Reactions 0 reactions Comments1 repliesAutoimmune DiseasesTips & AdviceNewly Diagnosed