MG TerminologyI bet we all remember the first few years after being diagnosed with Myasthenia gravis and constantly finding new MG-related terms we were unfamiliar with. Many of us are still...Reactions 0 reactions Comments2 repliesNewly DiagnosedDiagnosisAwareness
Myasthenia Gravis post COVID Vaccination Hello All, I want to share my story and wants to check if you have similar experience. And, wants to understand what's coming-up in the future. I have taken first...Reactions 0 reactions Comments15 repliesGeneralized MGNewly Diagnosed
Did Your MG First Symptoms Happen All at Once, a Crisis?A Myasthenic Crisis is the most severe event Myasthenia gravis can cause. Although it can vary, a crisis typically involves weakening multiple muscles, double vision, unsteady balance, and swallowing difficulties...Reactions 0 reactions Comments0 repliesNewly DiagnosedCrisisAwareness
Do You Have a Preference of Older or Younger Doctors to Treat MG?Do you prefer a young or older healthcare professional to treat your MG? Age by no means determines how much knowledge or skill a doctor offers. And an individual could...Reactions 0 reactions Comments0 repliesHealthcare TeamTreatmentNewly Diagnosed
What Main Quality Do You Look For in a DoctorWhen aiming to find a doctor that feels like a good fit, we must remember that health professionals are human and not perfect. Some have so much on their plate...Reactions 0 reactions Comments0 repliesNewly DiagnosedHealthcare TeamTreatment
Seronegative MGHello! I was diagnosed in March 2020. I am a 30 year old female...I'll give you a little backstory..heads up it will be long! To start- I have never had...Reactions 0 reactions Comments3 repliesAutoimmune DiseasesMedical MarijuanaNewly Diagnosed
Your Experience Terminating Being Under the Care of a DoctorMany of us have had at least one healthcare professional that we quit going to see because we believed they didn't provide quality care, listen, be respectful, be thorough, educate...Reactions 0 reactions Comments0 repliesTreatmentNewly DiagnosedHealthcare Team
Azathioprine (Imuran)Hello, I am newly diagnosed as of November '22. I am responding well to Pyridostigmine, with speech and swallowing problems greatly reduced. Now my neurologist wants me to take Azathioprine...Reactions 0 reactions Comments3 repliesNewly DiagnosedTreatment
Unusual presentation of symptomsHello I wanted to share my unique story in hopes of making sense of a mystery. My doctor after about a month of trying to rule other things out is...Reactions 0 reactions Comments10 repliesNewly DiagnosedSymptoms
possibly diagnosed with MuSK MG and confused/scaredI am a 34 year old woman in New York and for the last 7 months, been having strange symptoms on and off. It started with my arms/legs tingling and...Reactions 0 reactions Comments10 repliesNewly DiagnosedMuscle Weakness