Been ghosted by my neuro's PAEarly this year, just before I got my monthly shot in the eye, I mentioned to my retina specialist that my left eye would suddenly go droopy and I would...Reactions 0 reactions Comments5 repliesNewly DiagnosedHealthcare TeamTreatment
Highest Steroid Dose You’ve Been PrescribedWhat is the highest steroid dose you have been prescribed for Myasthenia symptoms? Did a doctor order this after you were in a crisis or significant flare? Have you been...Reactions 0 reactions Comments12 repliesTreatmentCrisisSymptoms
MG and HomeopathyHi, I'm very freshly diagnosed and trying to educate myself on the illness. Very grateful for this group and for technology, I live in Greece.. I have a question. Has...Reactions 0 reactions Comments3 repliesTreatment
Toll Prednisone Took on Your BodyWhat impact did Prednisone have on your body? What symptoms did you experience while on the steroid? How was your experience weaning off the medication? Have you struggled to do...Reactions 0 reactions Comments25 repliesSide EffectsTreatmentNewly Diagnosed
IVIG Side EffectsIVIG delivers healthy antibodies to improve an MG flare or crisis but can cause side effects. Headaches, chills, dizziness, and fluid retention are commonly reported (https://myasthenia-gravis.com/plasma-exchange-ivig). What rate of flow...Reactions 0 reactions Comments16 repliesSide EffectsTreatmentMuscle Weakness
UPDATE: Thymectomy surgeryI had my thymectomy surgery Dec 3rd and was released from the hospital the next day. It was a success. Oddly enough I am a lot more mobile than I...Reactions 0 reactions Comments23 repliesSurgeryThymectomyTreatment
Low-dose naltrexoneHello everyone There's someone here who has heard of or is taking LDN...Reactions 0 reactions Comments7 repliesGeneralized MGTreatment
new medicationLooking for info on MH patients that are using Ultomaris...I understand this is a new medication for MG and looks very promising....thoughts? side effects? Mu husband has occular MG which...Reactions 0 reactions Comments7 repliesTreatment
Thymus glandDo i have to be removed even if it isn't bloated? I have a breathing disorder, and the doctor tells me that it can only improve by 30 % if...Reactions 0 reactions Comments4 repliesThymectomyTreatment
Plasmapheresis cessation My wife was recently diagnosed with MG and had a thymectomy two and a half months ago. My expectation was that she would be on medication to control symptoms from...Reactions 0 reactions Comments6 repliesNewly DiagnosedTreatment
