Tapering Off Mestinon?I was on the phone with my PCP who told me that skipping a dose of Mestinon can cause my weakness symptoms to get worse even if I don't have...Reactions 0 reactions Comments4 repliesMuscle WeaknessGeneralized MGTreatment
Is anyone else on azathioprine?I have been taking azathioprine now for several months, but it does not seem to be helping much for muscle weakness and fatigue. My neurology PA said it can take...Reactions 0 reactions Comments4 repliesMuscle WeaknessSymptomsTreatment
NEW APPROVED MG TREATMENT for Gmg - Vyvgart HytruloSuper exciting!! The FDA has just approved Argenx’s subcutaneous injection (given in the fatty tissue just under the skin) formulation of efgartigimod, called Vyvgart Hytrulo (efgartigimod alfa and hyaluronidase-qvfc) to...Reactions 0 reactions Comments3 repliesTreatmentGeneralized MGSymptoms
Gabapentin and Myasthenia GravisGabapentin (Gralise, Horizant, Neuraptine) is deemed cautionary with Myasthenia gravis, as it can potentially worsen symptoms. Gabapentin is used to treat seizure, nerve, and pain conditions. It can be problematic...Reactions 0 reactions Comments27 repliesNewly DiagnosedTreatmentTriggers
How Long Have / Did You Experience Discomfort After Thymectomy?It has been almost 2 years since my transsternal thymectomy. I had a good amount of pain afterward, toward my stomach, sides, and back. At my follow-up appointments, my scans...Reactions 0 reactions Comments2 repliesThymectomyTreatmentNewly Diagnosed
Pyridostigmine (Mestinon) Shortage in UKYou may be among the many frantic over the pyridostigmine (mestinon) shortage in the United Kingdom. --- How has this affected you? Has your doctor adjust your treatment to accommodate?...Reactions 0 reactions Comments1 repliesTriggersTreatmentCrisis
Immunotherapy (stem cell)Does anyone have experence treating autoimmune MG with immunotherapy (stem cell) treatments simular to what is used in cancer treatment? I am 41 years old and have been recently diagnosed...Reactions 0 reactions Comments4 repliesTreatment
Highest Steroid Dose You’ve Been PrescribedWhat is the highest steroid dose you have been prescribed for Myasthenia symptoms? Did a doctor order this after you were in a crisis or significant flare? Have you been...Reactions 0 reactions Comments19 repliesTreatmentCrisisSymptoms
Do You Have a Preference of Older or Younger Doctors to Treat MG?Do you prefer a young or older healthcare professional to treat your MG? Age by no means determines how much knowledge or skill a doctor offers. And an individual could...Reactions 0 reactions Comments0 repliesHealthcare TeamTreatmentNewly Diagnosed
Soliris (Eculizumab) Outcome & Side EffectsEculizumab (Soliris®), https://myasthenia-gravis.com/biologics, is a Myasthenia gravis treatment approved for generalized myasthenia gravis (gMG)(https://myasthenia-gravis.com/generalized) & anti-acetylcholine receptor (AChR) antibody-positive (https://myasthenia-gravis.com/causes). Have you been treated...Reactions 0 reactions Comments0 repliesTreatmentRefractory MGGeneralized MG