Considerations for Driving with Myasthenia GravisWhen the diverse symptoms of myasthenia gravis converge to a diagnosis, the many unknowns can be the hardest part. Chief among them is the question “How will my lifestyle change?”... By Juliana Texley2 min readBookmark for laterReactions 0 reactions Comments0 comments
Take the Person Before Patient SurveyThe Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with a serious health condition like myasthenia gravis can... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Managing Flares by Listening to My BodyI am turning 30 this year, which has prompted me to start thinking about what I am taking away from my 20s. There are definitely moments I never want to... By Jessica Liao3 min readBookmark for laterReactions 0 reactions Comments0 comments
Myasthenia Eyes and the Emotional TollThe first symptom I experienced was the droopy eyelid. At first, I figured it was from the edema I had experienced for the previous couple of years getting worse. I... By Janice Koehn2 min readBookmark for laterReactions 0 reactions Comments20 comments
What Causes Remission in Myasthenia Gravis?Myasthenia gravis (MG) is a rare, autoimmune disease that causes a person’s muscles to become weak and to tire easily. The way the disease develops is different for each person... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments15 comments
The Role of Sunscreen for Myasthenia GravisAs the warmer and sunnier days approach, it is time to be mindful of how the sun’s rays impact our bodies. Some people with myasthenia gravis (MG) are particularly at... By Canadian Pharmacist2 min readBookmark for laterReactions 0 reactions Comments0 comments
Myasthenia Gravis Can't Stop Me“You have textbook case myasthenia.” Those were the exact terms the neurologist uttered at the time of my diagnosis. The words I had been waiting for. The conversation that would... By Meridith2 min readBookmark for laterReactions 0 reactions Comments7 comments
Finding Hope in The Midst of a PandemicI remember when the news started pouring in. Each day I fearfully anticipated the next update on a new virus taking over the world. It felt like a dark cloud... By Jessica Liao3 min readBookmark for laterReactions 0 reactions Comments2 comments
A Long and Frightening Road To a Myasthenia DiagnosisI was diagnosed with myasthenia gravis in December 2008. The long road to discovering the diagnosis wasn’t just frustrating, it was a nightmare! My symptoms began on Thanksgiving Day. The... By Janice Koehn2 min readBookmark for laterReactions 0 reactions Comments5 comments
COVID Vaccines for People with Myasthenia GravisAs the COVID-19 vaccine rollout continues, you may wonder how the vaccine affects people living with long-term illnesses like myasthenia gravis (MG). Are the vaccines safe, and when will you... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Community Views: Advice For the Newly DiagnosedReceiving a myasthenia gravis (MG) diagnosis can be a turning point. While you are no longer searching for answers when it comes to your symptoms, you now find yourself on... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments2 comments
We're in Charge of Celebrations!There’s a classic children’s book with the name I’m In Charge of Celebrations. It’s been 25 years since I read it. I can’t say I remember the details, but the spirit... By Juliana Texley2 min readBookmark for laterReactions 0 reactions Comments0 comments
How to Navigate a Mental Health EmergencyEditor’s Note: This article was originally shared by our sister site, ParkinsonsDisease.net, and was written by Brooke Huminski. Living with a chronic condition can sometimes include the experience of co-occurring... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
Tips for Those Newly Diagnosed with Myasthenia GravisIt can require a long journey before you finally arrive at a diagnosis of myasthenia gravis (MG). Having a rare disease can feel overwhelming and scary. You may have never... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
In America: What's That?The In America survey is now closed. It can take years to receive a myasthenia gravis diagnosis, often while experiencing frequent and debilitating symptoms. To learn more about the challenges... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments3 comments
MG Diagnosis JourneyWhile each person with myasthenia gravis has a different diagnosis story, there are many similarities that connect our community. Find out how your experiences compare to others, and where your... By Pam Jajko1 min readBookmark for laterReactions 0 reactions Comments2 comments
Advocating For Yourself At The Doctor’s OfficeThe process of being diagnosed with a chronic health condition can often be lengthy and difficult. People with myasthenia gravis frequently have a long journey between the time they first... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Thymectomy ScarsMyasthenia gravis (MG) is an autoimmune condition that causes muscle weakness. In MG, the immune system attacks the body’s nerves and muscles. This is often associated with abnormalities in an... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments1 comments
The Invisibility and Stigma of Chronic PainPain can be classified as an “invisible” symptom. Unlike a broken arm in a cast or a bleeding wound, pain cannot be immediately seen. Because of this, it is possible... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Speaking Up for Myasthenia Gravis: A Patient Interview with ClaireSharing our experiences can help us all feel less alone while navigating life with a chronic condition such as myasthenia gravis. Patient Advocate Claire shares a bit of her journey... By Editorial Team 8 min readBookmark for laterReactions 0 reactions Comments0 comments