Myasthenia Gravis Can Be Hard to SwallowThe first symptoms of myasthenia gravis often involve vision, but problems with swallowing can soon follow. Swallowing is a complex process that involves over 30 nerves and muscles. So it’s...reactions7comments
Unending Fatigue with Myasthenia GravisI just recently had a few days with no fatigue. They were wonderful! Those days keep me going no matter how few and far between they happen to be. Sometimes...reactions3comments
IVIG: Success or Failure?I’d been living with myasthenia gravis (MG) for about 3 months. The speech problem was now intermittent, but I still had minor issues with swallowing. My breathing problem had improved...reactions3comments
Saying Goodbye to PrednisoneI'm eating breakfast on a Saturday morning and all seems normal. However, this morning is different. For the first time in 2 years, a little white pill isn't in front...reactions3comments
Feeling Defeated by Myasthenia GravisThis week we've had high heat along with high humidity. I don't know about you, but for me, it's been a real struggle. You might have other triggers for your...reactions1comment
Motherhood and Myasthenia GravisWhen I feel better, I want to: This was the wish list I made as I lay bedridden with myasthenia gravis. These simple activities that were normal routines for most...reactionscomments
My Experience with Urinary IncontinenceI don’t know about you, but I get so tired of needing to pee, along with not being able to hold it. Sometimes it just runs out ... I feel...reactions18comments
Why Can’t We Find the Correct Treatment for Me?Back in December 2008, I’d been living with a diagnosis of myasthenia gravis (MG), asthma, allergies, and hypertension for a couple of weeks. Still, my right eye was closed! I...reactionscomments
Rediscovering a New "Normal"When I received my diagnosis of myasthenia gravis (MG) in February of 2019, everything changed. My full and busy life came to a halting stop. As my symptoms progressed, my...reactionscomments
Adjusting to Life with Myasthenia GravisI spent days in the hospital awaiting a diagnosis. Finally, I was home at last! When I got home, I had a welcome banner that my children and grandchildren made...reactions5comments
Resistance Band Stretching Helps my MGHow did people with myasthenia gravis (MG) get the nickname "snowflake"? Because we are all different just like a snowflake. No 2 people with MG are exactly alike! Some people...reactions3comments
Rituximab for Myasthenia GravisRituximab is a drug used for various autoimmune conditions, one being myasthenia gravis (MG). Many people with MG see a response with immunosuppressants. However, about 10 percent of people with...reactionscomments
Reclaiming My Career After Myasthenia GravisIn April of 2019, I officially quit. I stepped down from everything I was involved in. It felt like my aspirations were flushed down the drain as I left my...reactions1comment
Moody Myasthenia Roller Coaster RideI don't know about you, but for me, the moodiness of myasthenia gravis (MG) just makes it hard to live with. Think about it, 1 moment you are doing fine...reactions3comments
After a Long Wait ... Finally A DiagnosisIn case you missed it, you can read about the days leading up to Janice's diagnosis in the article, A Major Step Towards Diagnosis. The day of my Tensilon test...reactionscomments
Social Media and Myasthenia Gravis SupportWith a diagnosis of myasthenia gravis (MG) often comes a sense of intense loneliness. The disease is rare. The symptoms are mostly internal. Despite that ptosis wink, others often cannot...reactions5comments
Take the Managing Treatment and Medication SurveyThe Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a chronic (long-term) health condition like myasthenia gravis (MG)...reactionscomments
Frustrated with Vision ProblemsDo you also have vision problems? With all the stuff that goes on with myasthenia gravis (MG), one of the more frustrating things for me is the vision problems. Personally, I...reactions6comments
My Experience With RituximabI was diagnosed with anti-MuSK myasthenia gravis (MuSK+ MG) in February of 2019. My neurologist recommended getting rituximab because of its high remission rate for patients with MuSK+ MG. However...reactions3comments
Can You Die From Myasthenia Gravis?Myasthenia gravis (MG) is an autoimmune condition that impacts the way nerves and muscles communicate. The body mistakenly attacks itself, leading to muscle weakness. The word "myasthenia" means muscle weakness...reactions29comments
