Living

My journey to use mobility devices began when I could not get out and enjoy things like shopping, going to a park, or hiking. Although sometimes it is an issue...

Learning to live with myasthenia gravis after my diagnosis was depressing. No one bothered to tell me, but I knew I couldn’t drive safely, so I didn’t. My vision was...

The first symptoms of myasthenia gravis often involve vision, but problems with swallowing can soon follow. Swallowing is a complex process that involves over 30 nerves and muscles. So it’s...

I just recently had a few days with no fatigue. They were wonderful! Those days keep me going no matter how few and far between they happen to be. Sometimes...

I’d been living with myasthenia gravis (MG) for about 3 months. The speech problem was now intermittent, but I still had minor issues with swallowing. My breathing problem had improved...

I'm eating breakfast on a Saturday morning and all seems normal. However, this morning is different. For the first time in 2 years, a little white pill isn't in front...

This week we've had high heat along with high humidity. I don't know about you, but for me, it's been a real struggle. You might have other triggers for your...

When I feel better, I want to: This was the wish list I made as I lay bedridden with myasthenia gravis. These simple activities that were normal routines for most...

I don’t know about you, but I get so tired of needing to pee, along with not being able to hold it. Sometimes it just runs out ... I feel...

Back in December 2008, I’d been living with a diagnosis of myasthenia gravis (MG), asthma, allergies, and hypertension for a couple of weeks. Still, my right eye was closed! I...

When I received my diagnosis of myasthenia gravis (MG) in February of 2019, everything changed. My full and busy life came to a halting stop. As my symptoms progressed, my...

I spent days in the hospital awaiting a diagnosis. Finally, I was home at last! When I got home, I had a welcome banner that my children and grandchildren made...

How did people with myasthenia gravis (MG) get the nickname "snowflake"? Because we are all different just like a snowflake. No 2 people with MG are exactly alike! Some people...

Rituximab is a drug used for various autoimmune conditions, 1 being myasthenia gravis (MG). Many people with MG see a response with immunosuppressants. However, about 10 percent of people with...

In April of 2019, I officially quit. I stepped down from everything I was involved in. It felt like my aspirations were flushed down the drain as I left my...

I don't know about you, but for me, the moodiness of myasthenia gravis (MG) just makes it hard to live with. Think about it, 1 moment you are doing fine...

In case you missed it, you can read about the days leading up to Janice's diagnosis in the article, A Major Step Towards Diagnosis. The day of my Tensilon test...

With a diagnosis of myasthenia gravis (MG) often comes a sense of intense loneliness. The disease is rare. The symptoms are mostly internal. Despite that ptosis wink, others often cannot...

The Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a chronic (long-term) health condition like myasthenia gravis (MG)...

Do you also have vision problems? With all the stuff that goes on with myasthenia gravis (MG), one of the more frustrating things for me is the vision problems. Personally, I...