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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Newly Diagnoses

I have had pain in legs and feet prior to being newly diagnosed with MG. I have been seeing a neurologist for 15 years after my familyn physician thought I...

Diagnosis

Hello everyone, I live in Toronto, Ontario (Canada) and have been struggling with my health for years now. In most cases I wait several months to a year + to...

Unexplained Symptoms that are Not Characteristic MG Symptoms?

What unexplained symptoms do you have that are not characteristic MG symptoms?...

A little denial

Hi, I was diagnosed in January 2025. I have been on Mestinon 60 mg 3 X a day. At the end of November, I started having increased blurred vision and...

Have you heard about these latest FDA-approved MG treatments?

Have you heard of these latest FDA-approved MG treatments: "Rituximab (Rituxan®) can treat refractory MG with anti-muscle-specific kinase (MuSK) antibodies. Efgartigimod alfa and hyaluronidase-qvfc (Vyvgart® Hytrulo) can treat people with generalized...

Have you experienced losing your voice?

Have you or anyone you know with MG ever experienced losing their voice, also known as aphonia? I'm curious to hear about your experiences. Any stories would be appreciated!...

Myasthenia Gravis post COVID Vaccination

Hello All, I want to share my story and wants to check if you have similar experience. And, wants to understand what's coming-up in the future. I have taken first...

Negative Hospital Experience With MG?

Have you had a negative hospital experience with Myasthenia gravis? Did the staff not have familiarity or knowledge with treating a patient with MG? How did you get through the...

What Test(s) Were Used to Diagnose Your MG?

What tests did doctors run to diagnose your MG? Were imaging and bloodwork involved in your diagnosis?...

What were your immediate changes after your MG diagnosis?

As we begin our MG journey, there is the initial shock. After that, we realize that we need to make adjustments in our daily lives. What were you first and...

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