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Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Newly diagnosed

I recently went toa neurologist because of amyriad off what to me were unrelated symptoms:. Balance issues, hands tremor, double vision, droopy eyelids, coughing when lying down and sometimes when...

How did you navigate your first big holiday after your diagnosis?

As the holiday season is finishing up, I remembered when I was diagnosed it was 2020 so, like most people, we didn't do our big family get-togethers, like we'd normally...

Dizziness

Hi! I was diagnosed with MG in August. Dizziness made me unable to walk without looking like a stroke victim and that’s what the ER thought was the problem. I...

New diagnosis with double vision

Tried mestinon twice for 3-4 weeks with no improvement. I will see a neuro muscular specialist soon and wondering what others have tried when mestinon did not help...

My symptoms started years before I diagnosed with MG

I was diagnosed with MG this past February. Last November while working in the morning my vision went from clear to double. I work with Architectural drawings on a computer...

Had You Heard of Myasthenia Gravis Before Your Diagnosis?

When you were diagnosed, or a doctor proposed you could have Myasthenia gravis, had you heard of it before? If yes, from where? I was utterly clueless about what it...

MG without Excerbations

I believe I’ve had this since 2017 but it didn’t bloom until September 2023. It took me to September 3, 2024 to see a Neurologist. Dr ordered tests and the...

Toll Prednisone Took on Your Body

What impact did Prednisone have on your body? What symptoms did you experience while on the steroid? How was your experience weaning off the medication? Have you struggled to do...

Have you heard about these latest FDA-approved MG treatments?

Have you heard of these latest FDA-approved MG treatments: "Rituximab (Rituxan®) can treat refractory MG with anti-muscle-specific kinase (MuSK) antibodies. Efgartigimod alfa and hyaluronidase-qvfc (Vyvgart® Hytrulo) can treat people with generalized...

Have EMTs or emergency medical responders ever overlooked your medical alert card, necklace, or bracelet?

Have EMTs or emergency medical responders ever overlooked your medical alert card, necklace, or bracelet? --- Did this oversight result in a significant crisis or adverse reaction? --- What steps...

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