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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Have you heard about these latest FDA-approved MG treatments?

Have you heard of these latest FDA-approved MG treatments: "Rituximab (Rituxan®) can treat refractory MG with anti-muscle-specific kinase (MuSK) antibodies. Efgartigimod alfa and hyaluronidase-qvfc (Vyvgart® Hytrulo) can treat people with generalized...

Have you experienced losing your voice?

Have you or anyone you know with MG ever experienced losing their voice, also known as aphonia? I'm curious to hear about your experiences. Any stories would be appreciated!...

Are You Religious or Spiritual?

Do you identify with or employ religion or spirituality in your life? Were you this way before your Myasthenia gravis diagnosis? How have these practices, thoughts, and connections to something/someone/higher...

Myasthenia Gravis and Cardiovascular Medication

Myasthenia gravis may pose a risk to patients using cardiovascular medications to treat heart conditions (coronary artery disease, hypertension, high cholesterol, and heart arrhythmias). Beta-blockers, calcium channel blockers, and statins...

Myasthenia Gravis post COVID Vaccination

Hello All, I want to share my story and wants to check if you have similar experience. And, wants to understand what's coming-up in the future. I have taken first...

Negative Hospital Experience With MG?

Have you had a negative hospital experience with Myasthenia gravis? Did the staff not have familiarity or knowledge with treating a patient with MG? How did you get through the...

What Test(s) Were Used to Diagnose Your MG?

What tests did doctors run to diagnose your MG? Were imaging and bloodwork involved in your diagnosis?...

What were your immediate changes after your MG diagnosis?

As we begin our MG journey, there is the initial shock. After that, we realize that we need to make adjustments in our daily lives. What were you first and...

Newly diagnosed

I recently went toa neurologist because of amyriad off what to me were unrelated symptoms:. Balance issues, hands tremor, double vision, droopy eyelids, coughing when lying down and sometimes when...

How did you navigate your first big holiday after your diagnosis?

As the holiday season is finishing up, I remembered when I was diagnosed it was 2020 so, like most people, we didn't do our big family get-togethers, like we'd normally...

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