Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

How is mestinon supposed to help?

Hi all, recently been diagnosed with mg through achr positive blood tests. I've been put on 60mg mestinon 3x a day and...

In remission

Hi there just to give the community an update on my condition. I was diagnosed with mg in 2020 and had a...

Medication & Treatment Side Effects

Have you ever stopped a medication or treatment because of side effects? If so, did you switch to a different medication or...

Has anybody heard of MG just dissapearing and no medications being taken or required not even Mestinon

MG just miraculously dissaperaing like remission...

Medication side effects

Are you currently taking any medication to manage your MG symptoms? If so, which are you taking? How long have you been...

Featured

Do You Have Seronegative Myasthenia Gravis? What Treatment Has Improved Your Symptoms Best?

Are you diagnosed with seronegative MG? Which treatments have you been approved for? Which have you tried? Which form of treatment offered...

Does anyone else have bowel/bladder issues with MG?

Ever since I've been diagnosed with MG, I have developed horrible bowel and bladder issues where nothing seems to want to come...

New treatment (experimental?) Rystiggo

rozanolixizumab (brand name RYSTIGGO) Has anyone had any experience with this? I’m not questioning the validity of the trial, simply any after...

What questions do you wish your neurologist would ask?

When MG patients walk into a neurologist's office, they often hope the doctor will look past the MRI scans and reflex hammers...

Headaches or migraines as a primary or persistent/main symptom

Hi, just wanted to know if there were many of you with headaches or migraines as a main symptom. As myasthenia is...

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