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Read conversations, start a discussion, and connect with others about myasthenia gravis.

How do caregivers know the treatment provided by physicians is the best and most correct?

My husband of 53 years passed away from MG after doctors fumbled around attempting to find ways to treat this disease, putting him through months of in-and-out of the hospital...

Have you heard about these latest FDA-approved MG treatments?

Have you heard of these latest FDA-approved MG treatments: "Rituximab (Rituxan®) can treat refractory MG with anti-muscle-specific kinase (MuSK) antibodies. Efgartigimod alfa and hyaluronidase-qvfc (Vyvgart® Hytrulo) can treat people with generalized...

Colitis-possibly from Prednisone or IVIG

I just finished my second round of IVIG and spent the day in the hospital the next day. I was diagnosed with Colitis. ER doctor said it could be from...

double vision

For dealing with MY Ptosis based, or caused, double vision, I initially found the closing of one eye gave me clear vision in the other eye. The problem with this...

Steroid-Induced Glaucoma

Steroids, a treatment used for Myasthenia gravis, can cause side effects, including increased pressure within the eye, also known as glaucoma. If left unaddressed, glaucoma can lead to outcomes such...

Thymectomy via partial sternotomy

Hi there, I’m 20 and I’ve been diagnosed with MG for almost two years now and recently had a thymectomy via a partial sternotomy. I am day 6 post-op and...

Statins and Beta Blockers

I have read in various articles that taking Statins or Beta Blockers facilitates OMG. Discussed with Cardiologist and he became defensive that it was proven fact through research that they...

Plasmapheresis and IVIG

I was 91 years when I was diagnosed with MG. Since then I have been treated with the usual oral meds including prednisone, mestinon, mycophenolate mofetil and infusions of Soliris...

IVIG Side Effects

IVIG delivers healthy antibodies to improve an MG flare or crisis but can cause side effects. Headaches, chills, dizziness, and fluid retention are commonly reported (https://myasthenia-gravis.com/plasma-exchange-ivig). What rate of flow...

US Presidential Election and MG Healthcare

How are you feeling about future healthcare and MG treatment with a new administration coming into office in January?...

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