Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Rituxan (Rituximab) users and past users, how has your experience been with Rituxan?

Hi there, fellow Rituxan (Rituximab) users and past users! How has your experience been with Rituxan? Did you notice improvement with Rituxan? If so, how long did it take to...

Ultomiris (Ravulizumab-cwvz) users and past users! How has your experience been with Ultomiris?

Hi there, fellow Ultomiris (Ravulizumab-cwvz) users and past users! How has your experience been with Ultomiris? Did you notice improvement with Ultomiris? If so, how long did it take to...

Symptoms: shakiness?

One of my most irksome symptoms is extreme shakiness, especially in my hands, but occasionally through my whole body. I’ve been surprised that there haven’t been others complaining about shakiness...

Has a Fever Triggered Your Myasthenia Gravis Symptoms?

Has a fever triggered your MG symptoms? How severe?...

Have You Had Adverse Gastrointestinal Issues From Mestinon (Pyridostigmine)?

Have you experienced adverse gastrointestinal problems/side effects from using Mestinon (Pyridostigmine)?...

Exotropia with ocular MG

Hi all, Recently diagnosed with OMG (74 y/o male). My primary symptoms are double vision and intermittent exotropia in both eyes. Prism lenses don't work (I'm off the chart) and...

Myasthenia Gravis for 15 years and has Fallen; now has Brain Bleeds.

Hello, I'm new here and I'm researching for my Father in law who has had MG for over 15 years. About a month ago he passed out walking up the...

Financial Assistance Available Through The National Organization for Rare Diseases

NORD is a non-profit organization. This is from their website. "We provide patient assistance programs to help individuals living with rare diseases: Obtain medication Receive financial help with insurance premiums...

Orthotics/Braces

Hi! I was wondering if anyone has ever gotten orthotics/braces for muscle weakness? If so, what has your experience been? Has it helped? Even with meds and strengthening exercises from...

Do you have MG and have tried Magnesium L-Threonate or Magnesium Glycinate? Did you have any adverse reactions?

While there's a wealth of published studies on Magnesium Sulfate and Myasthenia gravis (https://myasthenia-gravis.com/clinical/magnesium-sulfate), the same can't be said for Magnesium L-Threonate or Magnesium Glycinate and MG. If you're an...

Categories

Select a category to find topics that interest you.