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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Ocular to Generalized Myasthenia Gravis

Commonly, the first symptoms of Myasthenia gravis experienced, and possibly the only MG symptoms for years, are double vision or drooping of the eyes, referred to as ocular MG, https://myasthenia-gravis.com/ocular...

PLEX or IVIG Complications?

Have you had complications or issues arise during or after a PLEX (plasma exchange/plasmapheresis) or IVIG (intravenous immunoglobulin injection) treatment? https://myasthenia-gravis.com/treatment...

Does anyone else in your immediate family have MG?

After a five-year struggle, I was finally diagnosed in 2018 as Seronagative. My journey through a long list of unexplained symptoms help me spot the same issues in my father...

Lack of medical support

I live on Cape Cod Mass. and was diagnosed with MG in 2021. I went to a Neurologist and was given the normal cocktail of medications. I was on them...

Wasn’t in Remission

I’m submitting this for my spouse, Karen, who was diagnosed with MG three years ago. She had a thymectomy and was later on IVIG infusions and later Cellcept was added...

Are You a Diabetic With Myasthenia Gravis?

Do you have diabetes as well as Myasthenia gravis? We would love it if you could share your experience and what your treatment regimen looks like....

Cellcept

I'm on 50 mg of prednisone plus 240 mg of mestinon daily. The prednisone is awful. Ive gained weight and i have the worse case of moon face ever. Can't...

Support Page for Those Age 60 and Older With Myasthenia Gravis

This is a support page for those with Myasthenia gravis age 60 and older. Feel free to share and discuss anything you please that follows our guidelines: https://health-union.com/community-rules/...

Flare Ups

Does any one have any experience with Flare ups how often they occur for how long a day week longer. How severe are they...

Do You Have Seronegative MG and Had Insurance Deny Coverage for Treatments?

Do you have seronegative Myasthenia gravis and have had a problem arise where your insurance is denying coverage for specific treatments? Or have they stopped covering a treatment once you...

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