Driving? Driving is safe after thymectomy surgery or how it feels when drive ? Anyone experienced of this ?? Need to know ? Thanks 😊...Reactions 0 reactions Comments4 repliesThymectomyOcular MG
Still Improving I have come a long way since my MG diagnosis in July 2020. I saw my specialist today. My eyelids were even and the twitching is reduced, double vision is...Reactions 0 reactions Comments1 repliesNewly Diagnosed
FeaturedFor the newly diagnosedBeing diagnosed with any condition can be challenging. Being diagnosed with a chronic autoimmune disease might feel impossible at first, but the good news is that it’s not impossible and...Reactions 0 reactions Comments3 repliesNewly Diagnosed
Communications on the JobWith such a rare condition, do you ask for accommodations or do you simply endure? What accommodations can help you continue to be productive?...Reactions 0 reactions Comments2 replies
Connection between MG and the sPLA2-11a Enzyme?See the link below which speaks to the impact of this enzyme which "has the capacity to bind to receptors at neuromuscular junctions and potentially disable the function of these...Reactions 0 reactions Comments0 repliesResearch & Clinical TrialsDiagnosisAutoimmune Diseases
Specifics of dxI hear you discuss antibodies, positive and negative this and that. What do I need to know to ask my neuro?...Reactions 0 reactions Comments1 replies
Ocular myasthenia gravis Has anyone had an EMG test on their face? OMG...Reactions 0 reactions Comments6 repliesAwarenessCoping
Immunosuppressed in a Vaxxed WorldThe masks are off...except at our house. After 2 different vaccines, my husband (on imuran and mestinon) still has no measurable antibodies. There are other tests, but the doctor recommends...Reactions 0 reactions Comments3 repliesAwareness
Abdominal cramps is common in our disease ??? Hi guys , do u guys have feelings about this .... Since several days , I had abdominal cramps ..can't tolerate at all ... I had research in google about...Reactions 0 reactions Comments8 replies
COVID PrecautionsThe CDC just published a caution about vaccination: "...(for immunocompromised persons) Covid-19 vaccine may not have been effective for them and encouraged them to take precautions as if they were...Reactions 0 reactions Comments0 repliesAwareness