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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Safe Cold products to use with gMG

I am coming down with a cold. My nose is running non-stop. What over the counter meds are safe and work with gMG?...

Plasma Replacement Therapy

Hi everyone Pete from the UK here - 70 years of age. I've had double vision since 2016 but recently developed ptosis. Finally been diagnosed with MG and now have...

Does Prednisone cause hair loss? Or is it Mestinon

Do MG meds cause hair loss? Not sure what meds are causing it. Mark...

Is Your Job MG Friendly?

Is your job/career myasthenia gravis friendly? You can interpret the question as you wish....

Mestinon not working

Hi everyone! I am having problems with Mestinon which I never had for 10 years. After MG crisis and plasmapheresis, Mestinon is not working like before. I take it to...

Possibility of only Ocular MG and not worse symptoms

I've had a sleepy eye in one eye for 30+ years. I'm currently approaching 60. At least my wife has noticed that I've had a droopy eye for our entire...

What Year Were You Diagnosed With Myasthenia Gravis?

What year were you diagnosed with Myasthenia gravis? How long did it take to receive a diagnosis? What treatments were available to you at the time? Have you tried any...

Bedridden or Limited-To-Home? What occupies you?

Do your myasthenia gravis symptoms or the combination with another condition currently have you bedridden or limited to home activities? What entertains you? Let's throw around ideas or favorites to...

What do you take for pain?

I have had gMG since I was 15. I’m now 46. I had a thymectomy at 15 and was in remission for sometime. I’m struggling with the pain I am...

Feeding Tube? Does It Impact Any Aspects of Your Life?

Do you have a feeding tube? If so, does having it impact any aspects of your life positively or negatively?...

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