infusionsI have had 3 infusions of oxidam. How long until see improvements?...Reactions0reactionsComments3 replies
Diagnosis - New Symptoms?Hello, I am so thankful for this forum. Your replies have been a tremendous help. I went to my neurology appointment today, and he immediately referred me to a bigger...Reactions0reactionsComments5 repliesSymptomsDiagnosis
medication side effectsHi. I recently started mestinon. I was having generalized weakness, shortness of breath, double vision/very blurry vision and ptosis. I was at a point that brushing my teeth is difficult...Reactions0reactionsComments2 replies
Therapies to relieve symptomsHey everyone, I'm looking for some therapies that might help relieve some of my symptoms. For a bit of background... I'm 26 and recently diagnosed with Myasthenia Gravis, whilst my...Reactions0reactionsComments5 repliesGeneralized MGNewly DiagnosedCoping
Difficulty swallowing while sleeping I have difficulty every night swallowing phlegm approx 4 hours every night after I have fallen asleep. I wake up, drink a lot of water and go back to sleep...Reactions0reactionsComments5 repliesAutoimmune Diseases
Good News! I was called by a neurology department at st. Claire hospital. They had a cancellation that needed to be filled! I was so relieved to get an appointment a month...Reactions0reactionsComments1 repliesCaregiving
EMG test on Mestinon?Hi, I have been put on Mestinon 90mg every 4 hours during the day and 180 mg time release at night. Should I be on Mestinon while receiving an EMG...Reactions0reactionsComments7 repliesGeneralized MGSeronegative
Been ghosted by my neuro's PAEarly this year, just before I got my monthly shot in the eye, I mentioned to my retina specialist that my left eye would suddenly go droopy and I would...Reactions0reactionsComments5 repliesNewly DiagnosedHealthcare TeamTreatment
Does IVIG work?Hello, I have generalized MG confirmed by blood work at age 35. Prednisone made me feel better but I stopped taking it after reading how it can destroy your body...Reactions0reactionsComments1 repliesGeneralized MG
Viral Cause?I've had tests for just about all of the viruses that are common. I had a strong antibody response to HHV-6, but when they did a PCR to confirm an...Reactions0reactionsComments2 replies