Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Lack of medical support

I live on Cape Cod Mass. and was diagnosed with MG in 2021. I went to a Neurologist and was given the normal cocktail of medications. I was on them...

Wasn’t in Remission

I’m submitting this for my spouse, Karen, who was diagnosed with MG three years ago. She had a thymectomy and was later on IVIG infusions and later Cellcept was added...

Are You a Diabetic With Myasthenia Gravis?

Do you have diabetes as well as Myasthenia gravis? We would love it if you could share your experience and what your treatment regimen looks like....

Cellcept

I'm on 50 mg of prednisone plus 240 mg of mestinon daily. The prednisone is awful. Ive gained weight and i have the worse case of moon face ever. Can't...

Support Page for Those Age 60 and Older With Myasthenia Gravis

This is a support page for those with Myasthenia gravis age 60 and older. Feel free to share and discuss anything you please that follows our guidelines: https://health-union.com/community-rules/...

Flare Ups

Does any one have any experience with Flare ups how often they occur for how long a day week longer. How severe are they...

Do You Have Seronegative MG and Had Insurance Deny Coverage for Treatments?

Do you have seronegative Myasthenia gravis and have had a problem arise where your insurance is denying coverage for specific treatments? Or have they stopped covering a treatment once you...

Side effects from medications that your doctor wont acknowledge

Have you ever started a new medication and began having symptoms that your doctor refuses to acknowledge? How did you overcome this? How did it make you feel?...

Has an Infection Triggered Your MG?

Have you ever had an infection that ultimately resulted in, whether caused or not, triggered/worsened Myasthenia gravis symptoms or an MG crisis?...

Reluctant to diagnose myasthenia gravis

Can anyone please help my neurologist will not acknowledge that 8 have myasthenia even though my antibodies are 205 I also have an intermittent droopy mouth blurred vision breathlessness and...

Categories

Select a category to find topics that interest you.