MYOCLONUS Nightly and now at times during afternoon nap. When extremely short of breath, my ribs feel as if squeezing and aching pain in the past. Now only mild activity brings...Reactions0reactionsComments10 repliesGeneralized MGSleepSymptoms
Swings of emotions following diagnosis I'm pretty new here, I'm experiencing huge swings of emotions following diagnosis. From extreme relief and happy that I have an answer to real anger and crying over being ignored...Reactions0reactionsComments4 repliesNewly DiagnosedCopingTips & Advice
What Should I Do?I went to BWH and meet with Dr. Dou.... a 150-mile round trip. He wanted to continue to see me, but it is too difficult for me to drive there...Reactions0reactionsComments6 replies
Advice about antibiotics I was diagnosed with MG in Feb '22, as a result of double vision and droopy eyelids. Luckily only misdiagnosed briefly as 3rd cranial nerve palsy before getting corrected diagnosis...Reactions0reactionsComments2 repliesNewly Diagnosed
MG and HomeopathyHi, I'm very freshly diagnosed and trying to educate myself on the illness. Very grateful for this group and for technology, I live in Greece.. I have a question. Has...Reactions0reactionsComments3 repliesTreatment
What would you tell yourself when you were first diagnosed?Its easy to notice where we are in the present and where we'd like to be in the future, but what would you tell yourself back when you were told...Reactions0reactionsComments9 repliesNewly DiagnosedMental HealthTips & Advice
Any side effects of long term IVIG treatment? I am now 53 years old. I got diagnosed with Thymoma in Dec 2020. Had surgery in February 2021. After surgery, in April 2021 I started slurry speech and difficulty...Reactions0reactionsComments1 replies
My PCP says...Although the neuro has yet to diagnose me, he put me on Mestinon and it seems to help (although only 2x per day, AM and bed) but my PCP says...Reactions0reactionsComments12 repliesGeneralized MGHealthcare TeamSymptoms
New to Myasthenia7 months ago I went to work and had pressure on the left side of my head and in my ear. As I was triaging a patient I felt my...Reactions0reactionsComments4 repliesOcular MG
No diplopia, will meds improve eye movement when reading?Do you guys think that this is worth treating? I'm very suspicious that I have ocular mg. I am positive for multiple physical signs including the ice test, cogan's lid...Reactions0reactionsComments3 repliesMuscle WeaknessSymptomsSide Effects