blepharoptosis surgery for Ptosis Hi, i am diagnosed with ocular myasthenia gravis and was given mestinon to help with my droppy eyelid. Aside from the medications, i am just wondering if anyone go for...Reactions0reactionsComments2 repliesAutoimmune Diseases
Mid-diagnosis journey and have a few questions Hi there, having been referred to neurology earlier in the year with a drooping right eyelid, I am now in the midst of tests and scans; blood tests came back...Reactions0reactionsComments2 replies
SpeechHello, I care for my mother, who has been diagnosed w/ Myasthenia Gravis, and she has issues w/ trying to think of words that she is trying to say. Can...Reactions0reactionsComments3 replies
Heat/SweatDear friends, Before I ever even had one symptom of MG that I knew of I started having a problem. I would be at work and if I got the...Reactions0reactionsComments1 replies
Mary LouWhile driving, I experienced severe double vision. Put a tissue behind one lens of my eyeglasses so I could continue driving that day. Went to my optometrist who referred me...Reactions0reactionsComments3 replies
toll prednisone took on my bodyI have a big round face, big neck, weight gain and round torso, just cut back over 3 months and now off of it. too early to see what will...Reactions0reactionsComments2 repliesGeneralized MG
FeaturedWhat symptoms have been the most surprising?Thinking about your myasthenia gravis symptoms and journey, what symptoms have been the most surprising, or unexpected?...Reactions0reactionsComments9 repliesSymptoms
ThymectomyWould you all please describe what it was like before and after having a thymectomy including what your recovery was like? I am most likely going to have one but...Reactions0reactionsComments9 repliesThymectomy
Im frustrated with testingI started with pretty extreme weakness in my legs and pain in my back and hips. My primary ruled out orthopedic causes and referred me to a neurologist. I am...Reactions0reactionsComments4 repliesSeronegativeCopingMuscle Weakness
Newly diagnosed Started treatment this week for mg 4 x half pyridostigmine but only slight change...is this normal? Also im in the UK and would love to connect with others as I...Reactions0reactionsComments6 replies