Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Seronegative diagnosis and two rare genetic diseases

I’ve tried posting as a status and it it’s won’t go. It’s been a really crappy couple of months. I’m so over wheelmen. My genetic test for mitochondrial myopathy came...

eye lid surgery

on March 3 I had eye lid surgery. I'm not very happy about the results. At my follow up 10 days ago, my Dr was disappointed as well. I am...

Does this mean I have MG

Hi guys, So I've been unwell for a while and Neuro considered MS. I had a hospital admission last month for Dysphagia and while there they did the ACHR antibody...

Seronegative MG

Hello! I was diagnosed in March 2020. I am a 30 year old female...I'll give you a little backstory..heads up it will be long! To start- I have never had...

Managing expectations

Hey folks - I'm pretty new to this, having been diagnosed with antibody positive MG in January. Currently, I am only experiencing ptosis and very occasional diplopia, both of which...

Travel with refractory MG

Hi friends! I have severe, refractory MG-diagnosed at onset 2 years ago-no other health conditions. I would very much like to travel overseas by plane or boat but am struggling...

Medicare supplements/disability

Hello! I will soon be eligible for Medicare for disability. I am fortunate to live in a state where I can purchase supplemental plans under age 65. I expect to...

Your Experience Terminating Being Under the Care of a Doctor

Many of us have had at least one healthcare professional that we quit going to see because we believed they didn't provide quality care, listen, be respectful, be thorough, educate...

Numbness and tingling in limbs

I have recently been diagnosed as having MG with MuSK. About 5 months ago I started feeling pain around my right elbow. My PCP diagnosed it as tennis elbow. About...

Surgery caused an MG crisis and Death (Throat stopped working)

My mom (74 yrs. old) recently passed away after being approved for a surgery to fix her broken arm. The anesthesia and surgery created enough stress that triggered a crisis...

Categories

Select a category to find topics that interest you.