I've bee n prescribed CellCeptAnyone out there using cellcept now who can give me some information, etc??? Reading about all the possible side effects is lots of fun, if you know what I mean!...Reactions0reactionsComments3 repliesAutoimmune DiseasesGeneralized MGAwareness
Sfemg Hello! I recently had a sfemg. In the frontalis I had 3 abnormally high jitters out of 20 pairs, but one of them was "uncertain". Then they tested orbicularis oculi...Reactions0reactionsComments0 replies
MG and going to the dentistI have MG and I am scared to get my mouth numbed up at the dentist. Does a person with MG do ok with this?...Reactions0reactionsComments5 repliesCoping
FrustrationSo after being told that I was in remission and being encouraged to cease my mycophenolate which I was not comfortable with I now find out through new blood tests...Reactions0reactionsComments1 replies
Diet and supplimentsAre there any guidelines for diet and suppliments with MG?...Reactions0reactionsComments5 repliesDiet & Nutrition
UPDATE: Thymectomy surgeryI had my thymectomy surgery Dec 3rd and was released from the hospital the next day. It was a success. Oddly enough I am a lot more mobile than I...Reactions0reactionsComments21 repliesThymectomySurgeryTreatment
Suspect MyastheniaI had a ct scan on my lungs because of a persistent cough. The scan showed atelectasis in both lungs. The pulmonary doctor said it was caused by muscle weakness...Reactions0reactionsComments3 repliesDiagnosis
Antibody Blood Test TimingAre blood test results affected by the timing of an antibody blood test draw with the immediate level of Myasthenia symptoms?...Reactions0reactionsComments2 replies
IVIG infusion I was told by my dr. I can’t have that infusion because I had 2 cancers back in 2008 and the side effect of that infusion is cancer ! I...Reactions0reactionsComments2 replies
what is the best way to deal this?newly diagnosed,what can I expect in the future?...Reactions0reactionsComments2 repliesCopingDiet & NutritionIntimacy & Relationships