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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Mestinon causing too frequent bowel movements.

Does anyone else have this problem and is there a work around? I am currently taking half of a 60 mg three times a day to moderate the side effects....

Droopy eyes

Does everyone have droopy eyes with. MG?...

Can MGnegative patient take VYTGARD

My doctor subscribed it for me and I am MG negative FDA only approved for MG positive...

Pretty sure I have MG

Hello! I have a long and complicated history so I won’t get too detailed with it. I have been trying to get a diagnosis for my muscle weakness and mobility...

Starting My MG Journey

I was setting this down to help my own recollection, but I find I have a lot of questions, so maybe someone would like to comment on some of the...

Muscle Weakness

My dad is in the middle of his third MG crisis in 18 months, the latest has included ventilator for 12 days —the past few days (no longer in ICU...

Borderline achr antibodies

Hey, new girl here. Long story short my gp text the other day to say the achr antibodies have come back "borderline" raised (reference range where I am is 0.0-0.59)...

Mouth and scalp

I'm 52 was diagnosed at 37 and have a strange variety of symptoms like burning mouth and scalp syndrome can't eat watermelon in large portions if I do it trigger...

Dance

I just got diagnosed with MG 3 days ago. I'm still in the hospital trying to regain my strength. I was fine one day...painting my kitchen, taking my grandkids to...

My experience with University of Chicago neuromuscular clinic-seronegative friensly

I feel like I need a disclaimer or something similar:This is just reflecting on my journey for a diagnosis. UCM has made a HUGE impact on my life and I...

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