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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Rystiggo (Rozanolixizumab-noli) users and past users, how has your experience been with Rystiggo?

Hi there, fellow Rystiggo (Rozanolixizumab-noli) users and past users! How has your experience been with Rystiggo? Did you notice improvement with rystiggo? If so, how long did it take to...

Vyvgart Hytrulo (Efgartigimod alfa and hyaluronidase-qvfc) users and past users, how has your experience been with Vyvgart Hytrulo?

Hi there, fellow Vyvgart Hytrulo (Efgartigimod alfa and hyaluronidase-qvfc) users and past users! How has your experience been with Vyvgart Hytrulo? Did you notice improvement with vyvgart hytrulo? If so...

Rituxan (Rituximab) users and past users, how has your experience been with Rituxan?

Hi there, fellow Rituxan (Rituximab) users and past users! How has your experience been with Rituxan? Did you notice improvement with Rituxan? If so, how long did it take to...

Ultomiris (Ravulizumab-cwvz) users and past users! How has your experience been with Ultomiris?

Hi there, fellow Ultomiris (Ravulizumab-cwvz) users and past users! How has your experience been with Ultomiris? Did you notice improvement with Ultomiris? If so, how long did it take to...

Have You Had Adverse Gastrointestinal Issues From Mestinon (Pyridostigmine)?

Have you experienced adverse gastrointestinal problems/side effects from using Mestinon (Pyridostigmine)?...

Pyridostigmine availability

I take 180 mg of pyridostigmine ER twice daily, but lately I've had trouble finding a pharmacy that has it. They all tell me that they can't get it from...

Pyridostigmine/Mestinon Adverse Reactions

Did you try Pyridostigmine/Mestinon and have adverse reactions causing you to stop taking it? If you are comfortable with sharing, which specific side effects?...

How Often Do You Receive IVIG infusions?

Do you receive IVIG (intravenous immunoglobulin) infusions? If so, how often? https://myasthenia-gravis.com/living/ivig-outcome...

Myasthenia Gravis and Anticonvulsants (Antiepileptics)

Anticonvulsants (or antiepileptics) are drugs designed to control or treat seizures, nerve pain, and some mood disorders. Some "mood stabilizers come from the anticonvulsant class. Common anticonvulsants include: Depakote® (divalproex...

PLEX or IVIG Complications?

Have you had complications or issues arise during or after a PLEX (plasma exchange/plasmapheresis) or IVIG (intravenous immunoglobulin injection) treatment? https://myasthenia-gravis.com/treatment...

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