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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Has anyone's doctors suggested these?

Hi all, recently my MG team have started bringing up a couple of things/ideas and I wondered if anyone had any experience with any of these. One was a temporary...

Unsuccessful Prednisone Taper

Has your doctor directed you to taper your prednisone, and your body rejected the withdrawal? --- At what point in the taper process did your body start showing signs of...

Myasthenia gravis and adverse reaction to the meningococcal vaccine?

Do you have Myasthenia gravis and had an adverse reaction to the meningococcal vaccine required before starting the MG treatments Ultomiris, Rystiggo, Zilbrysq, and Soliris? It's crucial to know that...

Zilbrysq (Zilucoplan) users and past users, how has your experience been with Zilbrysq?

Hi there, fellow Zilbrysq (Zilucoplan) users and past users! How has your experience been with Zilbrysq? Did you notice improvement with zilbrysq? If so, how long did it take to...

Rystiggo (Rozanolixizumab-noli) users and past users, how has your experience been with Rystiggo?

Hi there, fellow Rystiggo (Rozanolixizumab-noli) users and past users! How has your experience been with Rystiggo? Did you notice improvement with rystiggo? If so, how long did it take to...

Vyvgart Hytrulo (Efgartigimod alfa and hyaluronidase-qvfc) users and past users, how has your experience been with Vyvgart Hytrulo?

Hi there, fellow Vyvgart Hytrulo (Efgartigimod alfa and hyaluronidase-qvfc) users and past users! How has your experience been with Vyvgart Hytrulo? Did you notice improvement with vyvgart hytrulo? If so...

Rituxan (Rituximab) users and past users, how has your experience been with Rituxan?

Hi there, fellow Rituxan (Rituximab) users and past users! How has your experience been with Rituxan? Did you notice improvement with Rituxan? If so, how long did it take to...

Ultomiris (Ravulizumab-cwvz) users and past users! How has your experience been with Ultomiris?

Hi there, fellow Ultomiris (Ravulizumab-cwvz) users and past users! How has your experience been with Ultomiris? Did you notice improvement with Ultomiris? If so, how long did it take to...

Have You Had Adverse Gastrointestinal Issues From Mestinon (Pyridostigmine)?

Have you experienced adverse gastrointestinal problems/side effects from using Mestinon (Pyridostigmine)?...

Pyridostigmine availability

I take 180 mg of pyridostigmine ER twice daily, but lately I've had trouble finding a pharmacy that has it. They all tell me that they can't get it from...

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