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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Have You Had Adverse Gastrointestinal Issues From Mestinon (Pyridostigmine)?

Have you experienced adverse gastrointestinal problems/side effects from using Mestinon (Pyridostigmine)?...

Pyridostigmine availability

I take 180 mg of pyridostigmine ER twice daily, but lately I've had trouble finding a pharmacy that has it. They all tell me that they can't get it from...

Pyridostigmine/Mestinon Adverse Reactions

Did you try Pyridostigmine/Mestinon and have adverse reactions causing you to stop taking it? If you are comfortable with sharing, which specific side effects?...

How Often Do You Receive IVIG infusions?

Do you receive IVIG (intravenous immunoglobulin) infusions? If so, how often? https://myasthenia-gravis.com/living/ivig-outcome...

Myasthenia Gravis and Anticonvulsants (Antiepileptics)

Anticonvulsants (or antiepileptics) are drugs designed to control or treat seizures, nerve pain, and some mood disorders. Some "mood stabilizers come from the anticonvulsant class. Common anticonvulsants include: Depakote® (divalproex...

PLEX or IVIG Complications?

Have you had complications or issues arise during or after a PLEX (plasma exchange/plasmapheresis) or IVIG (intravenous immunoglobulin injection) treatment? https://myasthenia-gravis.com/treatment...

Are You a Diabetic With Myasthenia Gravis?

Do you have diabetes as well as Myasthenia gravis? We would love it if you could share your experience and what your treatment regimen looks like....

Do You Have Seronegative MG and Had Insurance Deny Coverage for Treatments?

Do you have seronegative Myasthenia gravis and have had a problem arise where your insurance is denying coverage for specific treatments? Or have they stopped covering a treatment once you...

VYVGART: Has Your IgG (Immunoglobulin G) Gotten Dangerously Low?

Have you been treated with VYVGART for your Myasthenia gravis, and have your IgG (Immunoglobulin G) gotten dangerously low? Did your doctor have you continue with the treatment or alter...

Opinion of Your Residing Country's Healthcare/Disability Assistance

Do you think the country you reside in has good healthcare and/or disability assistance? What aspects do you like/dislike? Anything related to Myasthenia gravis would be great to note....

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