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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Newly diagnosed

Started treatment this week for mg 4 x half pyridostigmine but only slight change...is this normal? Also im in the UK and would love to connect with others as I...

I've bee n prescribed CellCept

Anyone out there using cellcept now who can give me some information, etc??? Reading about all the possible side effects is lots of fun, if you know what I mean!...

Sfemg

Hello! I recently had a sfemg. In the frontalis I had 3 abnormally high jitters out of 20 pairs, but one of them was "uncertain". Then they tested orbicularis oculi...

MG and going to the dentist

I have MG and I am scared to get my mouth numbed up at the dentist. Does a person with MG do ok with this?...

Frustration

So after being told that I was in remission and being encouraged to cease my mycophenolate which I was not comfortable with I now find out through new blood tests...

Diet and suppliments

Are there any guidelines for diet and suppliments with MG?...

UPDATE: Thymectomy surgery

I had my thymectomy surgery Dec 3rd and was released from the hospital the next day. It was a success. Oddly enough I am a lot more mobile than I...

Suspect Myasthenia

I had a ct scan on my lungs because of a persistent cough. The scan showed atelectasis in both lungs. The pulmonary doctor said it was caused by muscle weakness...

Antibody Blood Test Timing

Are blood test results affected by the timing of an antibody blood test draw with the immediate level of Myasthenia symptoms?...

IVIG infusion

I was told by my dr. I can’t have that infusion because I had 2 cancers back in 2008 and the side effect of that infusion is cancer ! I...

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