eye lid surgeryon March 3 I had eye lid surgery. I'm not very happy about the results. At my follow up 10 days ago, my Dr was disappointed as well. I am...reactions2repliesVisionOcular MG
Does this mean I have MGHi guys, So I've been unwell for a while and Neuro considered MS. I had a hospital admission last month for Dysphagia and while there they did the ACHR antibody...reactions2repliesDiagnosis
Seronegative MGHello! I was diagnosed in March 2020. I am a 30 year old female...I'll give you a little backstory..heads up it will be long! To start- I have never had...reactions3repliesAutoimmune DiseasesMedical MarijuanaNewly Diagnosed
Managing expectationsHey folks - I'm pretty new to this, having been diagnosed with antibody positive MG in January. Currently, I am only experiencing ptosis and very occasional diplopia, both of which...reactions4repliesOcular MGSymptomsSurgery
Travel with refractory MGHi friends! I have severe, refractory MG-diagnosed at onset 2 years ago-no other health conditions. I would very much like to travel overseas by plane or boat but am struggling...reactions1reply
Medicare supplements/disabilityHello! I will soon be eligible for Medicare for disability. I am fortunate to live in a state where I can purchase supplemental plans under age 65. I expect to...reactions2repliesInsurance & Disability
Your Experience Terminating Being Under the Care of a DoctorMany of us have had at least one healthcare professional that we quit going to see because we believed they didn't provide quality care, listen, be respectful, be thorough, educate...reactionsrepliesTreatmentNewly DiagnosedHealthcare Team
Numbness and tingling in limbsI have recently been diagnosed as having MG with MuSK. About 5 months ago I started feeling pain around my right elbow. My PCP diagnosed it as tennis elbow. About...reactions3replies
Surgery caused an MG crisis and Death (Throat stopped working)My mom (74 yrs. old) recently passed away after being approved for a surgery to fix her broken arm. The anesthesia and surgery created enough stress that triggered a crisis...reactions3repliesSurgeryCrisisTriggers
Mestinon causing too frequent bowel movements.Does anyone else have this problem and is there a work around? I am currently taking half of a 60 mg three times a day to moderate the side effects....reactions4replies