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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Been ghosted by my neuro's PA

Early this year, just before I got my monthly shot in the eye, I mentioned to my retina specialist that my left eye would suddenly go droopy and I would...

Does IVIG work?

Hello, I have generalized MG confirmed by blood work at age 35. Prednisone made me feel better but I stopped taking it after reading how it can destroy your body...

Viral Cause?

I've had tests for just about all of the viruses that are common. I had a strong antibody response to HHV-6, but when they did a PCR to confirm an...

MYOCLONUS

Nightly and now at times during afternoon nap. When extremely short of breath, my ribs feel as if squeezing and aching pain in the past. Now only mild activity brings...

Swings of emotions following diagnosis

I'm pretty new here, I'm experiencing huge swings of emotions following diagnosis. From extreme relief and happy that I have an answer to real anger and crying over being ignored...

What Should I Do?

I went to BWH and meet with Dr. Dou.... a 150-mile round trip. He wanted to continue to see me, but it is too difficult for me to drive there...

Advice about antibiotics

I was diagnosed with MG in Feb '22, as a result of double vision and droopy eyelids. Luckily only misdiagnosed briefly as 3rd cranial nerve palsy before getting corrected diagnosis...

MG and Homeopathy

Hi, I'm very freshly diagnosed and trying to educate myself on the illness. Very grateful for this group and for technology, I live in Greece.. I have a question. Has...

What would you tell yourself when you were first diagnosed?

Its easy to notice where we are in the present and where we'd like to be in the future, but what would you tell yourself back when you were told...

My PCP says...

Although the neuro has yet to diagnose me, he put me on Mestinon and it seems to help (although only 2x per day, AM and bed) but my PCP says...

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