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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Your Azathioprine (Imuran) Side Effect Experience

Azathioprine, also known as Imuran, can cause several side effects, commonly including nausea and vomiting. Long-term usage can cause cancer and infection risk increases. Has your Myasthenia gravis ever been...

Side Effects From Pyridostigmine(Mestinon)

Have you experienced any side effects from the MG treatment Pyridostigmine, commonly called Mestinon? This article on our website, https://myasthenia-gravis.com/treatment/ache-inhibitor, discusses the side effects of these kinds of medications, acetylcholinesterase...

Tapering Off Mestinon?

I was on the phone with my PCP who told me that skipping a dose of Mestinon can cause my weakness symptoms to get worse even if I don't have...

Is anyone else on azathioprine?

I have been taking azathioprine now for several months, but it does not seem to be helping much for muscle weakness and fatigue. My neurology PA said it can take...

NEW APPROVED MG TREATMENT for Gmg - Vyvgart Hytrulo

Super exciting!! The FDA has just approved Argenx’s subcutaneous injection (given in the fatty tissue just under the skin) formulation of efgartigimod, called Vyvgart Hytrulo (efgartigimod alfa and hyaluronidase-qvfc) to...

Gabapentin and Myasthenia Gravis

Gabapentin (Gralise, Horizant, Neuraptine) is deemed cautionary with Myasthenia gravis, as it can potentially worsen symptoms. Gabapentin is used to treat seizure, nerve, and pain conditions. It can be problematic...

How Long Have / Did You Experience Discomfort After Thymectomy?

It has been almost 2 years since my transsternal thymectomy. I had a good amount of pain afterward, toward my stomach, sides, and back. At my follow-up appointments, my scans...

Pyridostigmine (Mestinon) Shortage in UK

You may be among the many frantic over the pyridostigmine (mestinon) shortage in the United Kingdom. --- How has this affected you? Has your doctor adjust your treatment to accommodate?...

Immunotherapy (stem cell)

Does anyone have experence treating autoimmune MG with immunotherapy (stem cell) treatments simular to what is used in cancer treatment? I am 41 years old and have been recently diagnosed...

Highest Steroid Dose You’ve Been Prescribed

What is the highest steroid dose you have been prescribed for Myasthenia symptoms? Did a doctor order this after you were in a crisis or significant flare? Have you been...

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