FeaturedVyvgartDid anyone get the new Vyvart infusion yet? My dr wants me try to try it but had flair after 13 yrs with no symptoms until Feb of this year...Reactions0reactionsComments51 repliesAutoimmune DiseasesTreatment
Cure or ReliefRecently (to me) CBS News released a segment on Tzield; a new medication recently approved by the FDA for some level of relief of Type 1 Diabetes. It was clear...Reactions0reactionsComments1 repliesTreatment
Been ghosted by my neuro's PAEarly this year, just before I got my monthly shot in the eye, I mentioned to my retina specialist that my left eye would suddenly go droopy and I would...Reactions0reactionsComments5 repliesNewly DiagnosedHealthcare TeamTreatment
MG and HomeopathyHi, I'm very freshly diagnosed and trying to educate myself on the illness. Very grateful for this group and for technology, I live in Greece.. I have a question. Has...Reactions0reactionsComments3 repliesTreatment
UPDATE: Thymectomy surgeryI had my thymectomy surgery Dec 3rd and was released from the hospital the next day. It was a success. Oddly enough I am a lot more mobile than I...Reactions0reactionsComments21 repliesThymectomySurgeryTreatment
new medicationLooking for info on MH patients that are using Ultomaris...I understand this is a new medication for MG and looks very promising....thoughts? side effects? Mu husband has occular MG which...Reactions0reactionsComments7 repliesTreatment
Thymus glandDo i have to be removed even if it isn't bloated? I have a breathing disorder, and the doctor tells me that it can only improve by 30 % if...Reactions0reactionsComments4 repliesTreatmentThymectomy
Plasmapheresis cessation My wife was recently diagnosed with MG and had a thymectomy two and a half months ago. My expectation was that she would be on medication to control symptoms from...Reactions0reactionsComments6 repliesNewly DiagnosedTreatment
Mother newly diagnosed with MGHi everyone, I am new to the forum and are from the Middle East, and looking for support and feedback. We My mother is 70 years old and she was...Reactions0reactionsComments9 repliesTreatmentTips & AdviceCaregiving
Vitamin DI have read that a high dose of Vitamin D has a good effect on persons suffering with MG although not proven? Has anyone have any advise on this or...Reactions0reactionsComments6 repliesTips & AdviceTreatment