Low-dose naltrexoneHello everyone There's someone here who has heard of or is taking LDN ?...Reactions0reactionsComments9 repliesGeneralized MGTreatment
Your Experience Terminating Being Under the Care of a DoctorMany of us have had at least one healthcare professional that we quit going to see because we believed they didn't provide quality care, listen, be respectful, be thorough, educate...Reactions0reactionsComments0 repliesTreatmentNewly DiagnosedHealthcare Team
Azathioprine (Imuran)Hello, I am newly diagnosed as of November '22. I am responding well to Pyridostigmine, with speech and swallowing problems greatly reduced. Now my neurologist wants me to take Azathioprine...Reactions0reactionsComments3 repliesNewly DiagnosedTreatment
FeaturedVyvgartDid anyone get the new Vyvart infusion yet? My dr wants me try to try it but had flair after 13 yrs with no symptoms until Feb of this year...Reactions0reactionsComments51 repliesAutoimmune DiseasesTreatment
Cure or ReliefRecently (to me) CBS News released a segment on Tzield; a new medication recently approved by the FDA for some level of relief of Type 1 Diabetes. It was clear...Reactions0reactionsComments1 repliesTreatment
Been ghosted by my neuro's PAEarly this year, just before I got my monthly shot in the eye, I mentioned to my retina specialist that my left eye would suddenly go droopy and I would...Reactions0reactionsComments5 repliesHealthcare TeamNewly DiagnosedTreatment
MG and HomeopathyHi, I'm very freshly diagnosed and trying to educate myself on the illness. Very grateful for this group and for technology, I live in Greece.. I have a question. Has...Reactions0reactionsComments3 repliesTreatment
UPDATE: Thymectomy surgeryI had my thymectomy surgery Dec 3rd and was released from the hospital the next day. It was a success. Oddly enough I am a lot more mobile than I...Reactions0reactionsComments21 repliesThymectomySurgeryTreatment
new medicationLooking for info on MH patients that are using Ultomaris...I understand this is a new medication for MG and looks very promising....thoughts? side effects? Mu husband has occular MG which...Reactions0reactionsComments7 repliesTreatment
Thymus glandDo i have to be removed even if it isn't bloated? I have a breathing disorder, and the doctor tells me that it can only improve by 30 % if...Reactions0reactionsComments4 repliesThymectomyTreatment