Does Anything Specific Provoke Breathing Difficulty for You?Do you experience problems with your breathing? Does anything specific trigger it? How often does it occur on average?...Reactions 0 reactions Comments1 repliesTriggersSymptomsCrisis
Was Gaslighting Involved in Your Diagnosis Journey?Did any health professionals dismiss your symptoms before you finally received the answers that you had an MG diagnosis? Were you ever told you were making up your symptoms or...Reactions 0 reactions Comments94 repliesSymptomsDiagnosisAwareness
Side effects from medications that your doctor wont acknowledgeHave you ever started a new medication and began having symptoms that your doctor refuses to acknowledge? How did you overcome this? How did it make you feel?...Reactions 0 reactions Comments1 repliesSide EffectsSymptoms
What were your immediate changes after your MG diagnosis?As we begin our MG journey, there is the initial shock. After that, we realize that we need to make adjustments in our daily lives. What were you first and...Reactions 0 reactions Comments9 repliesNewly DiagnosedSymptomsCoping
Managing weakness when waking upHi everyone, I am new to this forum/website and I was only formally diagnosed with MG in November 2023. I am 25 and based in the UK. I have comorbid...Reactions 0 reactions Comments1 repliesMuscle WeaknessNewly DiagnosedSymptoms
Is Your Job MG Friendly?Is your job/career myasthenia gravis friendly? You can interpret the question as you wish....Reactions 0 reactions Comments0 repliesWork & EmploymentTriggersSymptoms
Early Undiagnosed Symptoms?I am curious to know whether others with MG experienced early symptoms or had a close relative with a neurological illness? Many years ago I was told that I have...Reactions 0 reactions Comments1 repliesSymptoms
How Do You Cope With Hot Temperatures?Summer is almost here. Does the heat worsen your Myasthenia gravis symptoms? Which ones? https://myasthenia-gravis.com/living/heat How often are you outdoors in the hot temperatures? When you are outside in the...Reactions 0 reactions Comments24 repliesCopingWeatherSymptoms
Characteristics and Events Comprising Your Highs and Lows Exercising with MGWhat do your highs and lows look like or what is characteristic of these moments when attempting any exercise or physical activity with Myasthenia gravis? What makes for a moment...Reactions 0 reactions Comments0 repliesExerciseSymptomsTriggers
How has coping with your MG and accommodating been going this holiday season?How has coping with your MG and accommodating been going this holiday season? Do you plan to take New Year's Eve easy or have plans for a party or event?...Reactions 0 reactions Comments0 repliesMental HealthSymptomsWeather