What Year Were You Diagnosed With Myasthenia Gravis?What year were you diagnosed with Myasthenia gravis? How long did it take to receive a diagnosis? What treatments were available to you at the time? Have you tried any...Reactions 0 reactions Comments68 repliesAwarenessDiagnosisTreatment
Myasthenia Gravis and Cancer TreatmentDo you have Myasthenia gravis and have cancer or had cancer and are in remission? Can you explain your experience with the impact MG has had on your cancer journey...Reactions 0 reactions Comments0 repliesTreatment
How Do Healthcare Expenses Impact Your Budget?How do your Myasthenia gravis healthcare expenses impact your budget? How about your healthcare expenses as a whole? Has it led to debt or government reliance at any point? This...Reactions 0 reactions Comments0 repliesCostTreatmentWork & Employment
3 Tips You Wish You Had When You Were First Diagnosed With Myasthenia Gravis?Think back to when you were first diagnosed with Myasthenia gravis. What are 3 tips you wish you could go back in time and have given yourself? Mine would be:...Reactions 0 reactions Comments25 repliesTips & AdviceTreatmentNewly Diagnosed
Did COVID Make You a Germophobe?I was diagnosed with MG right at the start of covid. I was never one to focus on germs before then. I would wash my hands but never was worried...Reactions 0 reactions Comments3 repliesTreatmentMental HealthDepression
Your Azathioprine (Imuran) Side Effect ExperienceAzathioprine, also known as Imuran, can cause several side effects, commonly including nausea and vomiting. Long-term usage can cause cancer and infection risk increases. Has your Myasthenia gravis ever been...Reactions 0 reactions Comments3 repliesNewly DiagnosedSide EffectsTreatment
double visionFor dealing with MY Ptosis based, or caused, double vision, I initially found the closing of one eye gave me clear vision in the other eye. The problem with this...Reactions 0 reactions Comments14 repliesGeneralized MGTreatmentVision
Side Effects From Pyridostigmine(Mestinon)Have you experienced any side effects from the MG treatment Pyridostigmine, commonly called Mestinon? This article on our website, https://myasthenia-gravis.com/treatment/ache-inhibitor, discusses the side effects of these kinds of medications, acetylcholinesterase...Reactions 0 reactions Comments19 repliesTreatmentSide EffectsDiagnosis
IVIG Side EffectsIVIG delivers healthy antibodies to improve an MG flare or crisis but can cause side effects. Headaches, chills, dizziness, and fluid retention are commonly reported (https://myasthenia-gravis.com/plasma-exchange-ivig). What rate of flow...Reactions 0 reactions Comments17 repliesSide EffectsTreatmentMuscle Weakness
Confidence in your treatment regimen?How easily or difficult is it for you to have faith and confidence in your treatment regimen? Has this changed over time? Do you doubt faith in doctor decisions or...Reactions 0 reactions Comments2 repliesTreatmentRemissionHealthcare Team