Living

In the first 2 years of being diagnosed I found a doctor who was incredible. He really set the bar high for the things to look for in a practitioner...

I'm a bit frustrated right now. I'm hoping some of you can help me! I'm going to give some examples of why I hate myasthenia gravis (MG). I'm a pretty...

Many of us with myasthenia gravis suffer with varying degrees of weakness and pain. Activities most people take advantage of are more difficult for us. Whether you love to cook...

The days are getting shorter. Families and friends will be getting together for picnics and end-of-season celebrations. The continuing threat of COVID makes the option of outdoor social events more...

After 24 hours in the hospital for slurred speech, a drooping eye, double vision, and overall weakness, I had all clear tests. My frustration was rising with nurses about why...

Just after getting diagnosed with myasthenia gravis, I started taking Mestinon. It quickly made an amazing difference. A few months later, I started into an exacerbation, so my neurologist started...

For some reason, double vision is the hardest symptom for me to manage. I say double-vision, but for me it’s more like an intoxicated vision after drinking. It’s been quite...

Cleaning your home can be extremely tiring and difficult when living with myasthenia gravis (MG). This is true for me, even when I feel great. What can people living with...

I’ve had myasthenia gravis for almost 10 years now. I can’t believe I’m even typing that. It feels surreal to think back on how much I’ve learned since I was...

You’ve checked with your insurance about what durable equipment and mobility aids they will cover for myasthenia gravis (MG). You’ve discussed your needs with your physician. You’ve ruled out walkers...

I wrote an article called "My Experience with Doctors and Misdiagnoses" where I talked about how I finally got to meet with a neurologist who was able to figure out...

A mobility aid is a piece of equipment or device designed to help you walk when your mobility is impaired, temporarily or permanently or to provide other means of mobility...

If you have trouble walking due to myasthenia gravis and haven’t gotten a handicap placard or license plate, you may want to at least think about it. You can get...

I get asked a lot by other women who have myasthenia gravis (MG) what it was like for me when I was pregnant. While my story is a little different...

I am alone! No one understands what it's like for me. There's that deep pain inside, I just want to cry! The feeling is there and I just want to...

Myasthenia gravis (MG) causes some of us to feel fatigued all or most of the time. So how do we manage our daily hygiene and getting dressed for the day?...

My husband didn’t marry me when I was sick. He had no idea what was in store for his or our future when he got down on one knee and...

It was January 2021, a new year. My first neurologist appointment of the year, my doctor and I decided that the next step was a thymectomy surgery. I was a...

One of my biggest problems with range of motion is using my left arm due to pain from the left side of my neck, shoulder, and upper back that radiates...

The path to a myasthenia gravis (MG) diagnosis can be exhausting, but finding the right doctor can make a huge impact. We had the opportunity to hear from our patient...