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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Have you experienced losing your voice?

Have you or anyone you know with MG ever experienced losing their voice, also known as aphonia? I'm curious to hear about your experiences. Any stories would be appreciated!...

Myasthenia Gravis post COVID Vaccination

Hello All, I want to share my story and wants to check if you have similar experience. And, wants to understand what's coming-up in the future. I have taken first...

Negative Hospital Experience With MG?

Have you had a negative hospital experience with Myasthenia gravis? Did the staff not have familiarity or knowledge with treating a patient with MG? How did you get through the...

What were your immediate changes after your MG diagnosis?

As we begin our MG journey, there is the initial shock. After that, we realize that we need to make adjustments in our daily lives. What were you first and...

Newly diagnosed

I recently went toa neurologist because of amyriad off what to me were unrelated symptoms:. Balance issues, hands tremor, double vision, droopy eyelids, coughing when lying down and sometimes when...

How did you navigate your first big holiday after your diagnosis?

As the holiday season is finishing up, I remembered when I was diagnosed it was 2020 so, like most people, we didn't do our big family get-togethers, like we'd normally...

Dizziness

Hi! I was diagnosed with MG in August. Dizziness made me unable to walk without looking like a stroke victim and that’s what the ER thought was the problem. I...

New diagnosis with double vision

Tried mestinon twice for 3-4 weeks with no improvement. I will see a neuro muscular specialist soon and wondering what others have tried when mestinon did not help...

My symptoms started years before I diagnosed with MG

I was diagnosed with MG this past February. Last November while working in the morning my vision went from clear to double. I work with Architectural drawings on a computer...

Had You Heard of Myasthenia Gravis Before Your Diagnosis?

When you were diagnosed, or a doctor proposed you could have Myasthenia gravis, had you heard of it before? If yes, from where? I was utterly clueless about what it...

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