Recent positive MG blood test Hi, i received a letter from the hospital last night confirming that i had tested positive from a blood test for MG. I had been to the doctors after suffering...Reactions0reactionsComments3 repliesOcular MGNewly DiagnosedTips & Advice
Does a Negative ANA mean a negative for MG or are the specific antibody tests different.Hello, I have been having crazy and life changing symptoms within a week after my vaccine in 2021 ( Pfizer). Blurred/double vision Eyelid droop-steroids help Weakness Tremors Cognitively I feel...Reactions0reactionsComments1 repliesAutoimmune DiseasesTips & AdviceNewly Diagnosed
MG TerminologyI bet we all remember the first few years after being diagnosed with Myasthenia gravis and constantly finding new MG-related terms we were unfamiliar with. Many of us are still...Reactions0reactionsComments2 repliesDiagnosisNewly DiagnosedAwareness
Did Your MG First Symptoms Happen All at Once, a Crisis?A Myasthenic Crisis is the most severe event Myasthenia gravis can cause. Although it can vary, a crisis typically involves weakening multiple muscles, double vision, unsteady balance, and swallowing difficulties...Reactions0reactionsComments0 repliesNewly DiagnosedCrisisAwareness
Do You Have a Preference of Older or Younger Doctors to Treat MG?Do you prefer a young or older healthcare professional to treat your MG? Age by no means determines how much knowledge or skill a doctor offers. And an individual could...Reactions0reactionsComments0 repliesHealthcare TeamTreatmentNewly Diagnosed
What Main Quality Do You Look For in a DoctorWhen aiming to find a doctor that feels like a good fit, we must remember that health professionals are human and not perfect. Some have so much on their plate...Reactions0reactionsComments0 repliesNewly DiagnosedHealthcare TeamTreatment
Seronegative MGHello! I was diagnosed in March 2020. I am a 30 year old female...I'll give you a little backstory..heads up it will be long! To start- I have never had...Reactions0reactionsComments3 repliesAutoimmune DiseasesMedical MarijuanaNewly Diagnosed
Your Experience Terminating Being Under the Care of a DoctorMany of us have had at least one healthcare professional that we quit going to see because we believed they didn't provide quality care, listen, be respectful, be thorough, educate...Reactions0reactionsComments0 repliesTreatmentNewly DiagnosedHealthcare Team
Azathioprine (Imuran)Hello, I am newly diagnosed as of November '22. I am responding well to Pyridostigmine, with speech and swallowing problems greatly reduced. Now my neurologist wants me to take Azathioprine...Reactions0reactionsComments3 repliesNewly DiagnosedTreatment
Unusual presentation of symptomsHello I wanted to share my unique story in hopes of making sense of a mystery. My doctor after about a month of trying to rule other things out is...Reactions0reactionsComments10 repliesSymptomsNewly Diagnosed