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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Managing weakness when waking up

Hi everyone, I am new to this forum/website and I was only formally diagnosed with MG in November 2023. I am 25 and based in the UK. I have comorbid...

Plasma Replacement Therapy

Hi everyone Pete from the UK here - 70 years of age. I've had double vision since 2016 but recently developed ptosis. Finally been diagnosed with MG and now have...

Your Azathioprine (Imuran) Side Effect Experience

Azathioprine, also known as Imuran, can cause several side effects, commonly including nausea and vomiting. Long-term usage can cause cancer and infection risk increases. Has your Myasthenia gravis ever been...

Juvenile MG recently diagnosed

My 10 year old daughter was diagnosed on October 31 2023. (As she says. A Halloween to remember). My husband and I are overwhelmed by how many symptoms she has...

Severity of symptoms

My husband was experiencing muscle weakness in his legs for several years - needing to frequently "rest" between activities. We talked to several doctors with no real suggestions. Last year...

Did You Massage Your Thymectomy Scar?

Many hospitals and health institutions recommend scar massaging a few weeks post-operation. Different massaging methods may be suggested, but they all have the same purpose. The aim of scar massaging...

How does the heat affect you?

Yesterday I took a walk, the distance I've been able to work up to since starting Mestinon a few weeks ago. Nowhere near how far I could walk a year...

Gabapentin and Myasthenia Gravis

Gabapentin (Gralise, Horizant, Neuraptine) is deemed cautionary with Myasthenia gravis, as it can potentially worsen symptoms. Gabapentin is used to treat seizure, nerve, and pain conditions. It can be problematic...

How Long Have / Did You Experience Discomfort After Thymectomy?

It has been almost 2 years since my transsternal thymectomy. I had a good amount of pain afterward, toward my stomach, sides, and back. At my follow-up appointments, my scans...

Anyone else have MG and idiopathic transverse myelitis

I've had idiopathic transverse myelitis (TM) for the past several years affecting the lower half of my body. Last month I was diagnosed with seropositive MG after developing weak lip...

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