I've bee n prescribed CellCeptAnyone out there using cellcept now who can give me some information, etc??? Reading about all the possible side effects is lots of fun, if you know what I mean!...Reactions 0 reactions Comments3 repliesAutoimmune DiseasesGeneralized MGAwareness
A tuning point of healing MGMy healing journey reached a turning point when I first got in touch with self-healing Qigong meditation. I was in my friend’s car. His wife showed me the Chinese book...Reactions 0 reactions Comments8 repliesAutoimmune DiseasesAwareness
Myasthenia flare up Hi all, I was diagnosed at 21 years old, with mg and thymoma over 2 years ago. I was treated with steroids, IV and chemotherapy for thymoma tumour and have...Reactions 0 reactions Comments2 repliesAwarenessCrisis
How do I manage this mysthania ?gravisHi Am ifeoma I started experiencing weakness in 2010 because I was pregnant I thought it was one of the symptoms of pregnancy. After birth it continues that I have...Reactions 0 reactions Comments1 repliesAwareness
Covid and PaxlovidHi just wondering if anyone has taken Paxlovid for Covid? Paxlovid is an anti viral treatment which has FDA emergency use authorization. I was given this after testing positive for...Reactions 0 reactions Comments3 repliesAwarenessHealthcare TeamSide Effects
Ocular myasthenia gravis Has anyone had an EMG test on their face? OMG...Reactions 0 reactions Comments6 repliesAwarenessCoping
Immunosuppressed in a Vaxxed WorldThe masks are off...except at our house. After 2 different vaccines, my husband (on imuran and mestinon) still has no measurable antibodies. There are other tests, but the doctor recommends...Reactions 0 reactions Comments3 repliesAwareness
COVID PrecautionsThe CDC just published a caution about vaccination: "...(for immunocompromised persons) Covid-19 vaccine may not have been effective for them and encouraged them to take precautions as if they were...Reactions 0 reactions Comments0 repliesAwareness
Communicating about your myasthenia gravisWhen you encounter a friend or associate who is not familiar with myasthenia gravis, how do you (simply but accurately) explain the condition?...Reactions 0 reactions Comments3 repliesAwareness