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Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Awful problems after covid jab

Smell in the nose. Occasionally hot and sweaty problems with eyes could that be the vaccine or covid itself...

Tapering Off Mestinon?

I was on the phone with my PCP who told me that skipping a dose of Mestinon can cause my weakness symptoms to get worse even if I don't have...

Leg, Arm and Hand cramping and muscle spasms

I was diagnosed with General and Ocular MG in November, 2017. I have experienced severe leg, arm and hand cramps and spasms weekly or at times daily for a period...

HUSK MG

I accompanied my friend to a neurologist. Because of slurred speech and weak facial muscles he tested her for the Musk type of MG. The test was negative for MUSK...

NEW APPROVED MG TREATMENT for Gmg - Vyvgart Hytrulo

Super exciting!! The FDA has just approved Argenx’s subcutaneous injection (given in the fatty tissue just under the skin) formulation of efgartigimod, called Vyvgart Hytrulo (efgartigimod alfa and hyaluronidase-qvfc) to...

Pregnant with MG

Hello everyone, I've been away for quite some time now and that is due to the fact that I found out me and my hubby are expecting our 3rd child...

Mg and asthma

I have been treated since2001 for Mg. Briefly prior to that they said I had asthma. Mg was diagnosed and asthma treatment discontinued. I had chest infection over Xmas and...

Not reacting to treatments

Hi there im a caretaker and my spouse has MG 3 weeks ago he was not feeling good since the new IV treatment was not lasting him ( vyvgard) And...

Soliris (Eculizumab) Outcome & Side Effects

Eculizumab (Soliris®), https://myasthenia-gravis.com/biologics, is a Myasthenia gravis treatment approved for generalized myasthenia gravis (gMG)(https://myasthenia-gravis.com/generalized) & anti-acetylcholine receptor (AChR) antibody-positive (https://myasthenia-gravis.com/causes). Have you been treated...

Achr receptor: blocked, damaged, destroyed

I have learned that harmful Achr antibody can block, damage and destroy Achr receptor. If the Achr receptor is damaged or destroyed, gMG is hard to manage? Can damaged Achr...

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