new medicationLooking for info on MH patients that are using Ultomaris...I understand this is a new medication for MG and looks very promising....thoughts?...reactions7repliesTreatment
MuSK MG... ... anyone out there with MuSK MG? Hello, I have just been diagnosed with MuSk MG and am awaiting my first...reactions4replies
Thymus glandDo i have to be removed even if it isn't bloated? I have a breathing disorder, and the doctor tells me that...reactions4repliesThymectomyTreatment
Plasma aphersis Wondering if anyone knows. If getting 10treaments of plasma aphersis (didn’t work) am I losing any of protection from the Covid shots...reactions2repliesAutoimmune Diseases
How do I manage this mysthania ?gravisHi Am ifeoma I started experiencing weakness in 2010 because I was pregnant I thought it was one of the symptoms of...reactions1replyAwareness
I was born in 1956 . There was something wrong with my muscles...my brother had it too...We were tested for MS and other neurological diseases. We had very heavy eyelids and our eyes did not move. We were...reactions3repliesCoping
Diagnosis Eludes Us- So FrustratedAt 19 I noticed my daughter holding her chin up all of the time and she stopped singing around the house. She...reactions4repliesAutoimmune DiseasesDiagnosisGeneralized MG
Might it be MG?Right, for the last 18 months I have experienced double vision (vertical) accompanied by a tightness over my head from temple to...reactions4repliesDiagnosis
Covid and PaxlovidHi just wondering if anyone has taken Paxlovid for Covid? Paxlovid is an anti viral treatment which has FDA emergency use authorization...reactions3repliesSide EffectsAwarenessHealthcare Team
breathing problems with mgHi I was diagnosed with generalized mg nine months ago .I am currently taking a range of medication . pyridostigmine and immunosuppressants...reactions7repliesGeneralized MG