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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Harder to hold head up

I don't know if this is just a temporary thing (as in bad sleep position), but lately I get soreness in my...

Does anyone else have bowel/bladder issues with MG?

Ever since I've been diagnosed with MG, I have developed horrible bowel and bladder issues where nothing seems to want to come...

Fatigue/exhaustion in arms and legs

I was diagnosed in December 2022 with MG. It seems that some of the most common and bothersome symptoms I have experienced...

Sorting out MG and non MG symptoms - balance vs. weakness

context: my diagnosis is only tentative seronegative - but I have had classic MG-type symptoms for over 20 years with no meds...

Side effects of Mestinon

I have a colostomy. Mestinon causes me to have bloating, pressure and abdominal pain. I am concerned about continuing to use Mestinon...

Ear Pain

Has anyone experienced ear pain. The pain is not like an ear ache. It’s more like the outer part of your ear...

Drinking alcohol

Experience in drinking alcohol on pyridiostigmine ER. Doctor said it was fine, however internet says do NOT. I had a glass of...

My self healing journey

I was diagnosed as ocular MG in 2006, double vision was the only symptom. I got treatment of prednisone , starting from...

Weight loss

Is losing weight caused by MG? I'm not doing as much exercise due to muscle weakness but I am losing weight...

Travel Considerations

My best friend is 87 y.o. He wants me to do a cruise with him on a 160 passenger ship to Antartica...

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