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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Your Experience Terminating Being Under the Care of a Doctor

Many of us have had at least one healthcare professional that we quit going to see because we believed they didn't provide...

Azathioprine (Imuran)

Hello, I am newly diagnosed as of November '22. I am responding well to Pyridostigmine, with speech and swallowing problems greatly reduced...

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Vyvgart

Did anyone get the new Vyvart infusion yet? My dr wants me try to try it but had flair after 13 yrs...

Cure or Relief

Recently (to me) CBS News released a segment on Tzield; a new medication recently approved by the FDA for some level of...

Been ghosted by my neuro's PA

Early this year, just before I got my monthly shot in the eye, I mentioned to my retina specialist that my left...

MG and Homeopathy

Hi, I'm very freshly diagnosed and trying to educate myself on the illness. Very grateful for this group and for technology, I...

UPDATE: Thymectomy surgery

I had my thymectomy surgery Dec 3rd and was released from the hospital the next day. It was a success. Oddly enough...

new medication

Looking for info on MH patients that are using Ultomaris...I understand this is a new medication for MG and looks very promising....thoughts?...

Thymus gland

Do i have to be removed even if it isn't bloated? I have a breathing disorder, and the doctor tells me that...

Plasmapheresis cessation

My wife was recently diagnosed with MG and had a thymectomy two and a half months ago. My expectation was that she...

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