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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Older vs newer more targeted therapies

What are anyone’s experiences in changing over from older immunesupressants to the newer compliment inhibitors ( Solaris or ultimoris or ziucoplan )...

Muscle Spasms with and without Pyridostigmine (Mestinon)

Have you taken mestinon and experienced muscle spasms? Did your doctor have you suspend the use of the treatment? Have you noticed...

Intravenous immunoglobulin treatment (IVIG)

Intravenous immunoglobulin (IVIG) is a treatment option for many people with autoimmune diseases. IVIG can be a treatment for myasthenia gravis (MG)...

Newly diagnosed

I recently went toa neurologist because of amyriad off what to me were unrelated symptoms:. Balance issues, hands tremor, double vision, droopy...

Living with MG since March 2024

Life took a turn when diagnosis with MG. Survived a major flare following by thymectomy within half a year. Coping with recovery...

Outsmart MG

Neck weakness-Anyone else have it? For the first time ever, I went to get out of bed last week and my body...

Prednisone problems

Hello! I was on Prednisone for about a year and oh boy did it ever make me sick! I could barely get...

How did you navigate your first big holiday after your diagnosis?

As the holiday season is finishing up, I remembered when I was diagnosed it was 2020 so, like most people, we didn't...

How do you deal with fatigue?

Hello everyone! I am curious and would like to hear about the different ways you deal with/ handle being fatigued. As for...

Emergency room- advocating for your MG and communicating with staff

Have you had an emergency room visit since having MG? If you were unaware, many drugs can trigger or worsen MG symptoms...

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