Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Tell us about your symptom and treatment experience. Take our survey here.

Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Low-dose naltrexone

Hello everyone There's someone here who has heard of or is taking LDN ?...

New life with MG

I’m just starting my journey with MG. I’m scared and concerned. People are beginning to notice that there's something wrong. My eyes are sagging, they drift outwards. I have trouble...

Can MGnegative patient take VYTGARD

My doctor subscribed it for me and I am MG negative FDA only approved for MG positive...

Borderline achr antibodies

Hey, new girl here. Long story short my gp text the other day to say the achr antibodies have come back "borderline" raised (reference range where I am is 0.0-0.59)...

Ultomiris vs Vyvgart

My doctor is wanting to switch me from Ultomiris to Vyvgart. I wanted to know if there is anyone who has made the same switch - would like to hear...

Therapies to relieve symptoms

Hey everyone, I'm looking for some therapies that might help relieve some of my symptoms. For a bit of background... I'm 26 and recently diagnosed with Myasthenia Gravis, whilst my...

EMG test on Mestinon?

Hi, I have been put on Mestinon 90mg every 4 hours during the day and 180 mg time release at night. Should I be on Mestinon while receiving an EMG...

Does IVIG work?

Hello, I have generalized MG confirmed by blood work at age 35. Prednisone made me feel better but I stopped taking it after reading how it can destroy your body...

MYOCLONUS

Nightly and now at times during afternoon nap. When extremely short of breath, my ribs feel as if squeezing and aching pain in the past. Now only mild activity brings...

My PCP says...

Although the neuro has yet to diagnose me, he put me on Mestinon and it seems to help (although only 2x per day, AM and bed) but my PCP says...

Categories

Select a category to find topics that interest you.