Not reacting to treatmentsHi there im a caretaker and my spouse has MG 3 weeks ago he was not feeling good since the new IV treatment was not lasting him ( vyvgard) And...reactions1replyCaregivingAutoimmune DiseasesGeneralized MG
Soliris (Eculizumab) Outcome & Side EffectsEculizumab (Soliris®), https://myasthenia-gravis.com/biologics, is a Myasthenia gravis treatment approved for generalized myasthenia gravis (gMG)(https://myasthenia-gravis.com/generalized) & anti-acetylcholine receptor (AChR) antibody-positive (https://myasthenia-gravis.com/causes). Have you been treated...reactionsrepliesTreatmentRefractory MGGeneralized MG
Low-dose naltrexoneHello everyone There's someone here who has heard of or is taking LDN ?...reactions9repliesGeneralized MGTreatment
New life with MGI’m just starting my journey with MG. I’m scared and concerned. People are beginning to notice that there's something wrong. My eyes are sagging, they drift outwards. I have trouble...reactions19repliesAutoimmune DiseasesGeneralized MGOcular MG
Can MGnegative patient take VYTGARDMy doctor subscribed it for me and I am MG negative FDA only approved for MG positive...reactions2repliesGeneralized MG
Borderline achr antibodiesHey, new girl here. Long story short my gp text the other day to say the achr antibodies have come back "borderline" raised (reference range where I am is 0.0-0.59)...reactions4repliesDiagnosisGeneralized MG
Ultomiris vs VyvgartMy doctor is wanting to switch me from Ultomiris to Vyvgart. I wanted to know if there is anyone who has made the same switch - would like to hear...reactions7repliesGeneralized MG
Therapies to relieve symptomsHey everyone, I'm looking for some therapies that might help relieve some of my symptoms. For a bit of background... I'm 26 and recently diagnosed with Myasthenia Gravis, whilst my...reactions5repliesGeneralized MGNewly DiagnosedCoping
EMG test on Mestinon?Hi, I have been put on Mestinon 90mg every 4 hours during the day and 180 mg time release at night. Should I be on Mestinon while receiving an EMG...reactions7repliesGeneralized MGSeronegative
Does IVIG work?Hello, I have generalized MG confirmed by blood work at age 35. Prednisone made me feel better but I stopped taking it after reading how it can destroy your body...reactions1replyGeneralized MG