Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Active 3 days ago

Congenital myasthenic syndrome

I'm a Brit in my mid-seventies living in Germany and have had CMG for the past 35 years. CMG means that I...

Active 3 days ago

MG Anti Musk

My father's ventilator weaning is not happening since 45 days. Ivig just completed...

Active 3 days ago

Side Effects From Pyridostigmine(Mestinon)

Have you experienced any side effects from the MG treatment Pyridostigmine, commonly called Mestinon? This article on our website, https://myasthenia-gravis.com/treatment/ache-inhibitor, discusses the...

Active 5 days ago

Just Diagnosed 9 days ago.any advice on bowel management /frequency /diet on Montinon?

I now wear depends as a precautionary measure, as i always have urgency,especially after a meal sometimes during sleep.i am tired of...

Active 6 days ago

Just Starting

I am just starting this journey with feeling huge weights holding my thigh muscles and upper arm muscles down, trouble catching my...

Active 7 days ago

Depression-anxiety

MG makes me tired then I have Depression-anxiety which that medication makes me tired so im tired all the time Anyone with...

Active 7 days ago

Rate the Order in Which These Life Aspects Are Affected by MG

Rate the order in which the following aspects of your life are impacted by Myasthenia gravis, 1 being most affected by MG...

Active 7 days ago

Financial Assistance Available Through The National Organization for Rare Diseases

NORD is a non-profit organization. This is from their website. "We provide patient assistance programs to help individuals living with rare diseases:...

Active 7 days ago

Stress a massive factor.

I was diagnosed nearly 18 months ago and ,wow,how it has changed my life. Not knowing how I would cope, financially worried...

Active 7 days ago

Leg and Foot Cramping and Pain

Many individuals with Myasthenia gravis report having intensive leg/foot cramps and pain, most specifying this occurring predominately at night. Do you experience...

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