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Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Active 5 days ago

Muscle Spasms with and without Pyridostigmine (Mestinon)

Have you taken mestinon and experienced muscle spasms? Did your doctor have you suspend the use of the treatment? Have you noticed...

Active 5 days ago

are my symptoms a sign of having MG after having a thymectomy?

I have had a thymectomy on 4/29/24 a tumor was found on a cat scan for something not regarding MG it was...

Active 6 days ago

Ocular MG? Which Treatment Has Worked Best for You?

Do you have ocular Myasthenia gravis or at one point did before it turned generalized? What treatment, if any, has helped you...

Active 6 days ago

Muscle and neck pain

Does anyone elsr suffer from muscle and neck pain? I feel the weakness in limbs but the pain really bothers me....

Active 6 days ago

looking for a new Boston MG Doctor.

I am looking for a new Neurologist for MG, in Boston. Experienced, good bed side manner, who has appointments in the reasonable...

Active 7 days ago

How are folks able to tolerate Mestinon (Pyridostigmine)?

The doctor was having me take 60mg 3 times daily. Leg cramps and gut issues ended that. Does anyone have any tricks...

Active 7 days ago

Taking pyridostigmine

After 2 yrs of stroke like symptoms, blurry vision, low o2, intolerance to heat, trouble chewing and swallowing...I have a diagnosis of...

Rystiggo (Rozanolixizumab-noli) users and past users, how has your experience been with Rystiggo?

Hi there, fellow Rystiggo (Rozanolixizumab-noli) users and past users! How has your experience been with Rystiggo? Did you notice improvement with rystiggo?...

Low Co2 in bloodwork

Has anyone experienced low CO2 in their bloodwork? I have trouble breathing and wonder if this is a contributing factor....

Muscle weakness only in hand more in right hand then left hand

Seeks guidance, is it normal and OK to have weakness ONLY in hand? rest of all is quite ok and without any...

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