Active todayVyvgart vs Ultomeris ...I have to switch from my current IVIG to either Vyvart or Ultomeris. Has anyone tried both? Had success or concerns with either of them? Any feedback would be appreciated!...Reactions0reactionsComments0 repliesTreatment
Active yesterdayHarder to hold head up...I don't know if this is just a temporary thing (as in bad sleep position), but lately I get soreness in my neck or left shoulder blade area after spending...Reactions0reactionsComments0 repliesWeatherSymptomsTriggers
Active yesterdayHow do caregivers know the treatment provided by physicians is the best and most correct? ...My husband of 53 years passed away from MG after doctors fumbled around attempting to find ways to treat this disease, putting him through months of in-and-out of the hospital...Reactions0reactionsComments0 repliesTreatmentTriggersCaregiving
Active yesterdayfreezing this winter...Any one else freezing this winter? Read where folks have problems with the heat, but I am having problems with cold. Wife keeps the house about 70, and only time...Reactions0reactionsComments0 replies
Active todayMy neck gets so tired and tight....I have mg. Dr will say that there isn't any pain with mg. Than why does my neck and shoulders hurt so bad? It's like I've been trying to hold...Reactions0reactionsComments4 repliesMuscle WeaknessAutoimmune Diseases
Active yesterdayColitis-possibly from Prednisone or IVIG...I just finished my second round of IVIG and spent the day in the hospital the next day. I was diagnosed with Colitis. ER doctor said it could be from...Reactions0reactionsComments0 repliesTreatment
Active yesterdayI’ve been recently been diagnosed with MG and I am overwhelmed. ...I never think I would taking the medicine prescribed. I feel I am having Chemotherapy and the side effects scare me....Reactions0reactionsComments5 repliesAwareness
Active 4 days agoSwallowing-Lungs-kidneys with Myasthenia Gravis ...I have lung failure with my Myasthenia Gravis. I use to be incubated due to the failure. When nonvolatile acids that are usually moved by the lungs, and must be...Reactions0reactionsComments0 repliesAutoimmune DiseasesCrisisTips & Advice
Active 4 days agoHearing Aids...I have vision problems with MG, now I find out it is the reason I need Hearing Aids....Reactions0reactionsComments2 repliesAssistive Devices
Active 5 days agoOccular MG moving into generalized...Hi, Diagnosed with MG after double vision and thymoma discovered in 2018. Thymoma was removed and I went on Mestinon. Eyelid improved but in 2020 i stopped taking the Mestinon...Reactions0reactionsComments1 replies
Active 5 days agoMeds for ocular myasthenia gravis...I developed double vision and a droopy eyelid direction after my 2nd cataract surgery. It took 7 months and 5 providers later to diagnose my ocular mg (no other generalized...Reactions0reactionsComments11 repliesTreatmentOcular MG
Active 6 days agoMG Conference ...Is anyone going to the MG Conference at the end of March? Has anyone ever attended one before?...Reactions0reactionsComments5 repliesAwareness
Ophthalmic Migraine...I was diagnosed with Ophthalmic Migraine (Ocular Migraine). So, my sight fades in my left eye and after maybe 10-20 minutes I regain my sight. It's only the lower part...Reactions0reactionsComments0 replies
How was your MG diagnosed?...I have been struggling with debilitating fatique, muscle weakness and pain for many months. I can't even bring in my own groceries at this point. I've had bloodwork, x-ray, echocardiogram...Reactions0reactionsComments3 replies
How did you feel after IVIG...Hello, I just finished my first dose of IVIG. I’m curious how others felt after their first treatments and subsequent doses? I couldn’t swallow yesterday and started having excruciating pain...Reactions0reactionsComments7 repliesTreatment
Mold Toxicity/Exposure and MG...Are you dealing with MG and suspect you’ve been exposed to mold, or have you had confirmed mold exposure in the past? Mold exposure or toxicity can lead to a...Reactions0reactionsComments0 repliesTips & AdviceAwarenessTriggers
Steroid-Induced Glaucoma...Steroids, a treatment used for Myasthenia gravis, can cause side effects, including increased pressure within the eye, also known as glaucoma. If left unaddressed, glaucoma can lead to outcomes such...Reactions0reactionsComments2 repliesOcular MGTreatmentDriving
Do you have treatment goals?...Do you and your neurologist have measurable treatment goals? I know not everyone does, but because MG is not curable, it seems to me treatment should have some measurable objectives...Reactions0reactionsComments1 repliesTreatmentSymptomsGeneralized MG
IVIG-Octagam...Hello! I am new to this forum and new to MG! I will share my story shortly but wanted to ask if anyone had tried Octagam IVIG? I tried Mestinon...Reactions0reactionsComments0 replies
Tips for Finding MG-Accommodating Vacation Activities...When planning a myasthenia gravis-friendly vacation, finding suitable accommodations and attractions may initially seem challenging. However, many parks and attractions offer options that can provide a sense of relief and...Reactions0reactionsComments4 comments
