Community Views: Having a Thymectomy...One treatment for myasthenia gravis (MG) is a thymectomy. A thymectomy is a surgery on your chest. The surgery removes the thymus...reactions9comments
How Complement Inhibitors Helped Stabilize My Condition and Change My Life...The game of trial and error with trying new treatments for MG is a game many of us know too well. I...reactionscomments
My Medication Story and Question...To be brief: as I have already submitted my whole MG story previously. When I was diagnosed with MG (4 1/2 years...reactionscomments
One Sided Weakness From MG?...Has anyone with MG experienced persistent, one-sided arm/tricep weakness like this? About three years ago (29 years old), I suffered a pretty...reactionscomments
Understanding How Your Immune System Affects Your Nerves & Muscles With MG...If you live with myasthenia gravis (MG), you know the feeling: Your muscles grow weak and tired, sometimes for no clear reason...reactionscomments
How I Can Tell If My MG Medication is Working...My neurologist said some medications take approximately six or eight weeks to truly get into your system and start working. However, with...reactions1comment
Ways I Save Energy Around the House With Myasthenia Gravis...Living with Myasthenia Gravis has forced me to look at energy differently. Before MG, energy felt endless or at least predictable. Now...reactions2comments
Your gMG treatment: time for something different? ...Your journey with generalized myasthenia gravis is uniquely yours. Symptoms may shift, needs may change, and what once worked may not anymore...
When Exercise Begins in Bed...We hear it all the time: movement is good for us. Doctors recommend it. Physical therapists encourage it. Research continues to highlight...reactions1comment
Am I Glad I Got MG? Maybe......I had a life. I was healthy, the kids had grown up and moved on, and I had just retired and really...reactions1comment
Community Health Leaders...In order to stay up to date on latest treatments, drug discovery, clinical studies and how to cope with myasthenia gravis every...
Stefani Shea-Akers...Stefanie Shea-Akers lives with her husband of 20 years and two cats in central California. She has BA and MA degrees in...
Meridith O'Connor...Meridith was previously a health leader on Myasthenia-Gravis.com. Meridith O’Connor is a patient advocacy specialist dedicated to unveiling the value of the...
Trying a New Infusion Treatment: My Experience...When I started a new infusion treatment for MG, I was excited to contribute my personal data to an ongoing research study...reactionscomments
Old Symptoms, New Treatment: My Experience With Prepping for Ultomiris...When I started my Ultomiris treatments in 2023, I’d kind of reached the end of my hope for remission and had begun...reactions27comments
Newly Diagnosed: Navigating Your First Myasthenia Gravis Treatment Steps...The days and weeks following a generalized Myasthenia Gravis (gMG) diagnosis can feel like a whirlwind. Between processing the news and sitting...reactionscomments
Considering Advanced Therapy: Evaluating the Next Step in Your MG Journey...When standard first-line therapies like Mestinon or steroids aren't providing enough symptom control, the conversation shifts toward advanced therapies, such as targeted...reactionscomments
Recently Starting Advanced Therapy: Realities of the First Months...Making the final leap to start an advanced gMG therapy—whether it's an IV infusion or a subcutaneous injection—is a psychological milestone. The...reactionscomments
Established on Treatment: Long-Term Management & The Choice to Switch...Being established on a gMG plan requires a balancing act of daily symptom tracking, medication management, and routine check-ins. But stability can...reactions3comments
Reclaiming Your Freedom: Modern Ways to Get Myasthenia Gravis Treatment...Living with myasthenia gravis (MG) often means planning your whole life around treatment. For many people, that has meant long trips to...reactionscomments
