Unpredictable Fatigue With Myasthenia Gravis...One of the hardest parts of dealing with myasthenia gravis (MG) is fatigue. Especially never knowing when it's going to hit or...reactions33comments
I'm Lost...I was diagnosed with MG during a hospital visit based on muscle weakness, difficulty breathing, and overall discomfort. After 10 days in...reactions1comment
Ocular MG...I have recently been diagnosed with ocular MG. I've had double vision in my left eye since I've been 40. I am...reactions2comments
Old Symptoms, New Treatment: My Experience With Starting Ultomiris...When I started my Ultomiris treatments in 2023, I’d kind of reached the end of my hope for remission and had begun...reactionscomments
Speaking Out for Myasthenia Gravis...What does awareness mean to me? Awareness is knowledge. If you have experienced something, then you at least have a basic knowledge of...reactionscomments
June is MG Awareness Month! Let’s Be Proactive!...June is Myasthenia Gravis (MG) Awareness Month. Every year the MG community strives to create awareness, turning it into action by making...reactions2comments
Katie Simpson...Photograph courtesy of Ellen Likens and Adam Rivera, from The (Final) Cincinnati Women’s Pro-Am 2026. Katie has been an MG snowflake since...
Juliana Texley...Juliana was previously a health leader on Myasthenia-Gravis.com. Juliana Texley has a PhD in science education with an emphasis on genetics. She...
Community Health Leaders...In order to stay up to date on latest treatments, drug discovery, clinical studies and how to cope with myasthenia gravis every...
I Refused to Let MG Control My Life...I had my first MG symptoms (flare-ups lasting 2-3 months each) in early 2020. It was classified as Late-Onset MG. Immediately I...reactionscomments
How I Try to Tell the Difference Between MG Fluctuations and Progression...One of the hardest parts of living with Myasthenia Gravis, at least for me, is trying to figure out what’s a normal...reactions3comments
Myasthenia Crisis in the Hospital...The only time I had breathing problems was when I had a myasthenia crisis. Fortunately I was in hospital at the time...reactions2comments
Community Team...Welcome to Health Union's Community Team. Our Community Team is made up of a diverse group of employees of Health Union who...
What MG Patients Really Want Their Neurologists to Ask...For those living with Myasthenia Gravis (MG), a visit to the neurologist often follows a predictable script. There are strength tests, eye...reactions9comments
How to Cope With Unpredictable and Fluctuating Symptoms...Dealing with unpredictable and fluctuating symptoms can be quite scary and quite a headache if we want to be honest. You never...reactionscomments
Life Will Never Be the Same...There is no joy left in life for me with myasthenia gravis (MG). I know most people would read that sentence and...reactions20comments
My Seronegative MG Journey With Prednisone...When I was first diagnosed with Myasthenia Gravis (MG), I was in the middle of a severe flare-up. It was so bad...reactionscomments
Understanding Mental Health and Mental Health Resources...Living with a chronic illness is about more than just physical symptoms. It also impacts how you think, feel, and act. For...
Understanding Mental Health and Mental Health Resources...Living with a chronic illness is about more than just physical symptoms. It also impacts how you think, feel, and act. For...
Health Resources...Living with a chronic health condition can be challenging, frustrating, and tiring. You might feel like your life is on hold. Frequent...
