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Read conversations, start a discussion, and connect with others about myasthenia gravis.

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Have you tried Donepezil (Aricept)?

Donepezil is commonly used in the treatment of mild to moderate Alzheimer's disease. It works by increasing the supply of acetylcholine to...

Active 5 days ago

Ocular MG? Which Treatment Has Worked Best for You?

Do you have ocular Myasthenia gravis or at one point did before it turned generalized? What treatment, if any, has helped you...

Is there anyone out there that has had a thymectomy after the age of 50 with success? Please tell me you’re good...

I am 51, I have been referred to a surgeon for a thymectomy. My MG specialist says nooooo due to my age...

IVIG Side Effects

IVIG delivers healthy antibodies to improve an MG flare or crisis but can cause side effects. Headaches, chills, dizziness, and fluid retention...

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Do You Have Seronegative Myasthenia Gravis? What Treatment Has Improved Your Symptoms Best?

Are you diagnosed with seronegative MG? Which treatments have you been approved for? Which have you tried? Which form of treatment offered...

Its Been A While

Silly question, for my MG treatment my doctor has me on a temporary high dose of Predisone in and effort to bring...

How do caregivers know the treatment provided by physicians is the best and most correct?

My husband of 53 years passed away from MG after doctors fumbled around attempting to find ways to treat this disease, putting...

CAR T Cell therapy or UCAR T cell therapy

My family member has been diagnosed with MG. It's been refractory to the first 4 infusions. He has the opportunity to enter...

Toll Prednisone Took on Your Body

What impact did Prednisone have on your body? What symptoms did you experience while on the steroid? How was your experience weaning...

Azathioprine

Does anyone take this medication? The side effects scare me but prednisone makes me super crazy and my blood sugars are through...

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